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HEATH 

'esource 
Center 



API 
THE AMERICAN C 



mCATI 



\TI( 
EDUC 



ON POSTSECONDARY 
DUALS WITH DISABILITIES 




HEATH RESOURCE CENTER 



National Clearinghouse on Postsecondary Education 
for Individuals with Disabilities 



The HEATH Resource Center is a clearinghouse which operates under a Congressional legislative mandate 
to collect and disseminate information nationally about disability issues in postsecondary education. Funding 
from the United States Department of Education enables the Center to increase the flow of information about 
educational support services, policies, and procedures related to educating or training people with 
disabilities after thev have left high school. 

HEATH Resource Center is designed to: 

• identify and describe educational and training opportunities 

• promote accommodations which enable full participation bv people with disabilities in regular, as well 
as specialized, postsecondary programs; 

• recommend strategies which encourage participation in the least restrictive and most productive 
environment possible for each individual. 

To accomplish these goals, HEATH has an extensive publication program, a toll-free telephone service, 
and a professional staff which participates in a strong network of colleagues across the country. 

Information from HEATH is a newsletter published three times a vear and distributed nationally, free of 
;'." arge, to subscribers. The newsletter highlights campus programs, provides information about new or 
pending legislation, and offers reviews of new publications and other media products. HEATH resource 
papers, monographs, guides, and directories focus on disability-related issues as they emerge on college 
campuses or in vocational-technical training schools, adult education programs, independent living centers, 
and other communitv-based training programs. Single copies of HEATH publications are free and may be 
reproduced. Most are available bv request on audiocassette tape or computer disk. 

HEATH's constituency is comprised of postsecondary administrators and service providers, teachers and 
instructors, hisTi school and vocational rehabilitation couselors, government officials, librarians, health 
professionals, journalists, as well as those with disabilities and their families. The toll-free telephone line is 
available to encourage direct interaction with HEATH staff. 






Participation bv HEATH staff in national, regional, and statewide conferences and training workshops has 
led to the development of a national network of professionals across the nation. This network enables staff to 
suggest speakers, access options, audiovisual materials, and other resources to enhance such meetings. 



HEATH staff can be reached Mondav-Fridav, 9 a.m.-5 p.m. Eastern Time at (800) d44-3284; or, in the 
Washington, DC metropolitan area, at (202) 939-9320; both lines are available for Voice or TDD calls. 

Inquiries mav also be mailed to HEATH at One Dupont Circle, Suite 800, Washington, DC 20036. Inquiries 
will receive prompt attention. 

HEATH Resource Center is a program of the American Council on Education. 




Robert L. Albright, Board Chair, ACE 

President, Johnson C. Smith University 
Robert H. Atwell, President, ACE 



HEATH 

Resource 
(jemer 

A PROGRAM OF 
THE AMERICAN COUNCIL ON EDUCATION 



NATIONAL CLEARINGHOUSE ON POSTSECONDARY 
EDUCATION FOR INDIVIDUALS WITH DISABILITIES 



Resource Directory 



1991-1992 



H 









THE RESOURCE DIRECTORY 

The HEATH Resource Directory is a biannual selection of resources in the major areas of interest in the 
field of postsecondary education and disability, rather than a comprehensive list of such resources. Many of 
the organizations included can respond to questions about an individual's own situation, and most can 
provide published materials. In addition, staff may be asked about sources of assistance close to the caller's 
location. 

The Table of Contents of the Directory provides an outline of its organization. At the end of many sections 
there are a few Additional Resources, which include books or directories, magazines, and/or other 
organizations which HEATH staff find helpful. Because many of the listed organizations have multiple 
purposes and can provide more than one type of service, readers of a particular section are referred to other 
organizations in other sections of the Directory ("See Also:"). The Index lists names of organizations 
described in each section, and the list of Toll-free Telephone Services reproduces only numbers from this 
Directory. HEATH has resource papers on many of the Directory topics. Publications may be ordered, free 
of charge, by writing or calling the Center. 

Ann R. Davie, Editor; Rhona C. Hartman, Director, HEATH Resource Center; Dottie Jones, Production 
Assistant; June, 1991. 

The HEATH Resource Directory has been prepared under Cooperative Agreement No. H030C0000190A 
with the United States Department of Education, awarded to the American Council on Education. The 
contents do not necessarily reflect the views of the U.S. Government, nor does mention of products or 
organizations imply endorsement by the U.S. Government. This Directory is free by request to the HEATH 
Resource Center, One Dupont Circle, NW, Suite 800, Washington, DC 20036. 



HEATH RESOURCE DIRECTORY 

1991-1992 

CONTENTS 



About the HEATH Resource Center Inside front cover 

The Resource Directory ii 

ADVOCACY, ACCESS, AND AWARENESS 

Advocacy and Awareness Across-Disability 1 

Architectural Access 2 

Education and Career Access 2 

Family Support 6 

COMMUNITY INTEGRATION 

Employment 9 

Independent Living 10 

Rehabilitation 11 

DISABILITY-SPECIFIC ORGANIZATIONS 

Chronic Illness 13 

Developmental Disabilities 14 

Hearing Impairment 16 

Learning Disabilities 18 

Mobility Impairment and Injury-Related Disabilities 19 

Psychiatric Disabilities 21 

Vision Impairment 22 

FUNDING 24 

LEGAL ASSISTANCE 

Organizations 25 

Federal Laws and Regulations 25 

Technical Assistance on Civil Rights 28 

TECHNOLOGY 29 

INDEX 31 

TOLL-FREE TELEPHONE SERVICES Inside Back Cover 



in 



ADVOCACY, ACCESS, and AWARENESS 



ADVOCACY ACROSS-DISABILITY 

American Association of Disability Communicators 
(AADC) 

c/o National Easter Seal Society 

70 E. Lake Street 

Chicago, IL 60601 

(312) 726-6200 

(312) 726-4258 (TDD) 

AADC is an information network among 
communicators (such as writers, reporters, and 
television/radio news broadcasters) who address 
issues relevant to people with disabilities. Examples 
of these issues are media coverage, media access, 
transportation access, and the language used to 
describe people with disabilities. 

Clearinghouse on Disability Information 

Office of Special Education and 
Rehabilitative Services (OSERS) 
U.S. Department of Education 
Room 3132, Switzer Building 
Washington, DC 20202-2524 
(202) 732-1241 

The Clearinghouse responds to inquiries on a wide 
range of topics. Information is especially strong in 
the areas of federal funding for programs serving 
people with disabilities, federal legislation affecting 
the disability community, and federal programs 
benefitting people with handicapping conditions. 
The Clearinghouse staff are knowledgeable about 
who has information and refers inquirers to 
appropriate sources. 

Disabled Veterans of America (DAV) 

807 Maine Avenue, SW 
Washington, DC 20024 
(202) 554-3501 

DAV is a national membership organization of 
service-oriented disabled veterans, their families, 
and survivors. Its National Service Program (NSO) 
advises members and non-members across the 
country. Without charge, DAV NSOs act as 
advocates for individuals to obtain the benefits to 
which they are entitled. DAV works to lower the 
rate of unemployment among disabled veterans and 
the level of discrimination against them. The 
Voluntary Service Program (VAVS) operates 
nationwide, as does the Transportation Network. 



National Council on Disability 

800 Independence Avenue, SW, Suite 814 
Washington, DC 20591 
(202) 267-3846 (Voice) 
(202) 267-3232 (TDD) 

The National Council is an independent federal 
agency comprised of 15 members appointed by the 
President and confirmed by the Senate. It is charged 
with addressing, analyzing, and making 
recommendations on issues of public policy which 
affect people with disabilities. The National Council 
originated and developed the first draft of the 
Americans with Disabilities Act, which was signed 
into law by President Bush on July 26, 1990. The 
National Council distributes a free newsletter, 
FOCUS, and welcomes requests for copies of policy 
papers. Publications include On the Threshold of 
Independence (1988), An Assessment of Federal 
Laws and Programs Affecting Persons with 
Disabilities — Legislative Recommendations (no 
cost). 

National Easter Seal Society 

70 East Lake Street 
Chicago, IL 60601 
(312) 726-6200 
(312) 726-4258 (TDD) 

1350 New York Avenue, NW 
Washington, DC 20005 
(202) 347-3066 

The National Easter Seal Society is a nonprofit, 
community-based health agency dedicated to 
increasing the independence of people with 
disabilities. Easter Seals offers a wide range of 
quality services, research and programs to assist 
adults and children with disabilities and their 
families. The centers offer employment 
opportunities for physical, occupational, speech, 
and other rehabilitation professionals. The 
Washington office monitors federal legislation and 
regulations, and it publishes a quarterly newsletter 
Washington Watch Line. A publications list is 
available. 

National Organization on Disability (NOD) 

910 16th Street, NW, Suite 600 
Washington, DC 20006 
(202) 293-5960 
(202) 293-5968 (TDD) 

NOD promotes the fuller participation of Americans 
with disabilities in all aspects of community life. Its 
primary program is the Community Partnership 
Program, a network of 2000 towns, cities, and 
counties nationwide. NOD's Community 
Partnerships undertake many different activities to 
improve attitudes toward people with disabilities; to 



expand educational and employment opportunities; 
and to eliminate physical barriers and expand 
participation in religious, cultural, and recreational 
activities. The quarterly newsletter, REPORT, is 
available upon request. 

World Institute on Disability (WID) 

510 16th Street 

Oakland, CA 94612 

(415) 763-4100 (Voice/TDD) 

WID is a public policy institute seeking solutions to 
major problems faced by disabled people of all ages. 
Founded in 1983, it offers information on 
independent living, personal attendant care, and 
study results of the IDEAS project in foreign 
countries. 



Architectural and Transportation Barriers 
Compliance Board (ATBCB) 

1111 18th Street, NW, Suite 501 
Washington, DC 20036-3894 
(202) 653-7834 (Voice/TDD) 
(800) 872-2253 (Voice/TDD 

ATBCB is an independent agency charged with 
ensuring that certain facilities designed, 
constructed, leased or altered with Federal funds 
since September 1969 are accessible to and usable by 
persons with disabilities. In addition, the Office of 
Technical and Information Services provides 
technical assistance on barrier-free design and the 
removal of barriers. It answers questions concerning 
architectural, transportation, communication, and 
attitudinal barriers affecting persons with 
disabilities. 



ADDITIONAL RESOURCES 

Guidelines for Reporting and Writing about 
People with Disabilities (1990) is a pamphlet 
available ($.15) from the Media Project, Research & 
Training Center on Independent Living (RTC/IL), 
BCR/3111 Haworth, University of Kansas, 
Lawrence, KS 66045 (913) 864-4095. 

Report on Disability Programs is a newsletter 
published biweekly. It tracks news issues and 
people concerned with disability; it also reports 
about federal legislation and activities affecting 
people with disabilities (26 issues per year/$203.50). 
Published by Business Publishers Inc., 951 Pershing 
Drive, Silver Spring, MD 20910 (301) 587-6300. 



Association of Higher Education Facilities Officers 
(APPA) 

1446 Duke Street 
Alexandria, VA 22314 
(703) 684-1446 

APPA (formerly Association of Physical Plant 
Administrators) is an international association 
whose purpose is to promote excellence in the 
administration, care, operation, planning, and 
development of higher education facilities. Regional 
directors throughout the country can provide 
referrals to speakers on the topic of accessibility in 
educational facilities. 



EDUCATION AND CAREER ACCESS 



ARCHITECTURAL ACCESS 

American Institute of Architects (AIA) 

c/o Information Center 
1735 New York Avenue, NW 
Washington, DC 20006 
(202) 626-7493 

The Institute has published two annotated 
bibliographies of material on barrier-free design. 
One bibliography lists 60 books, and the other offers 
13 pages of references to periodical articles. Both are 
free to AIA members ($10.00 each for non-members) 
upon request. 



ACT Test Administration 

P.O. Box 168 

Iowa City, IA 52243 

(319) 337-1332 

ACT (American College Testing) can respond to 
some needs for special arrangements at its regular 
testing centers, although large-type or braille 
editions or audiocassette tapes are not available 
there. With proper documentation of the disability, 
individual administrations of the assessment can be 
arranged for those students with physical or 
perceptual disabilities who cannot attend 
established test centers, take the tests within the 
allotted time using regular-type test booklets, or 
who are confined to hospitals on all scheduled test 
dates. Call or write for a Request for Special 
Testing. 



American Alliance for Health, Phys Ed, Recreation 
and Dance 

1900 Association Drive 
Reston, VA 22091 
(703) 476-3400 

The Alliance is a membership organization of 
professionals in the fields of physical education, 
recreation, health and safety, and dance. Their 
Adapted Physical Activity Council has a nationwide 
network to provide information about adapting 
curricula and activities to the needs of people with 
disabilities. Back copies of the journal, Able Bodies, 
and other publications are available. 

American Association for Counseling and 
Development (AACD) 

5999 Stevenson Avenue 
Alexandria, VA 22304 
(703) 823-9800 
(703) 370-1943 (TDD) 

AACD is the parent organization for counselors 
from educational and social service settings across 
the country who have joined one or more of 15 
subdivisions of AACD. Included are postsecondary, 
secondary, and elementary school counselors; 
vocational counselors; mental health, employment, 
and diagnostic/evaluation rehabilitation counselors; 
and other interested professionals. Each group has 
its own newsletter, publications, and conferences. 
AACD can furnish a publications list. 

American Association for the Advancement of 

Science (AAAS) 

Project on Science, Technology, and Disability 

1333 H Street, N.W. 

Washington, DC 20005 

(202) 326-6667 (Voice/TDD) 

The Project addresses the concerns of scientists and 
engineers with disabilities, and offers suggestions 
about improving accessibility of science programs 
for students with disabilities. The Directory of 
Scientists and Engineers with Disabilities (2nd 
Edition, 1987) lists people in various parts of the 
country who are available for consultation ($10.00, 
plus $3.00 postage). Science for Handicapped 
Students in Higher Education is out of print but 
available in many college libraries. Scientific and 
Engineering Societies: Resources for Career 
Planning, edited by Martha Redden and Virginia 
Stern, offers counselors and students an overview- of 
the wide range of career possibilities and level of 
education required in science and engineering 
($6.00, prepaid to AAAS Sales Dept.) Access to the 
Science and Engineering Laboratory and 
Classroom (1986) is available free from AAAS or 
from HEATH. Available free is a 1991 series entitled 
Barrier-Free in Brief, covering four topics: 
workshops and conferences for scientists and 
engineers, classrooms and laboratories in science 
and engineering, access in word and deed, and 
access to science literacy. 



American Association of Collegiate Registrars and 
Admissions Officers (AACRAO) 

One Dupont Circle, Suite 330 
Washington, DC 20036 
(202) 293-9161 

AACRAO is a non-profit, voluntary, professional, 
education association of degree-granting 
postsecondary institutions, government agencies, 
private educational organizations, and education- 
oriented businesses in the United States and abroad. 
Its goal is to promote higher education and further 
the professional development of members working 
in admissions, enrollment management, financial 
aid, institutional research, records and registration. 
AACRAO and HEATH have jointly published 
Recruitment, Admissions, and Handicapped 
Students. This guide provides practical suggestions 
for implementation of the law. It is available free 
from either organization. 

American Chemical Society 

1155 Sixteenth Street, NW 
Washington, DC 20036 
(202) 872-4438 

The Society's Committee on the Handicapped 
publishes a manual entitled Teaching Chemistry to 
Physically Handicapped Students. 

American Council on Rural Special Education 
(ACRES) 

National Rural Development Institute 

Miller Hall 359 

Western Washington University 

Bellingham, WA 98225 

(206) 676-3576 

Dedicated to the interests of individuals with 
disabilities living in rural areas, ACRES publishes 
the ACRES Ruralink, a quarterly newsletter. Also 
available is a 1987 publication, Rural Transition 
Strategies That Work ($5.00). The $45.00 
membership fee provides access to a job referral 
service, conferences, monographs, and other 
resources. 

American Society of Allied Health Professions 
(ASAHP) 

1101 Connecticut Avenue, NW, Suite 700 
Washington, DC 20036-4387 
(202)857-1150 

ASAHP publishes Trends, a monthly newsletter for 
allied health professionals which includes 
information about integrating people with 
disabilities into the field. It also publishes Alliances 
in Health and Education: Serving Youngsters with 
Special Needs, which includes an instructors' guide 
of strategies for teaching and ways to incorporate 
relevant topics into curricula, workshops, and 
conferences ($19.95). Their Journal ($65.00) and 
Trends ($40.00) are included with membership. 
Contact ASAHP for details. 



Association on Handicapped Student Service 
Programs in Postsecondary Education (AHSSPPE) 

P.O. Box 21192 
Columbus, OH 43221 
(614) 488-4972 (Voice/TDD) 

AHSSPPE is a national non-profit organization of 
members from over 600 institutions of higher 
education. It promotes full participation of 
individuals with disabilities in college life. 
Information sharing is a key element of the goal to 
upgrade the quality of services available to students 
with disabilities. Membership benefits include 
annual conferences, the bimonthly newsletter, Alert, 
and a membership directory. AHSSPPE also 
sponsors special interest groups, including: 
Blindness/Visual Impairment, Career Counseling, 
Community Colleges, Deafness/Hearing 
Impairment, Head Injury, Learning Disabilities, 
Minority Issues, TRIO programs, Women and 
Disability, Canadian Programs, Computers, 
Disability Studies, and Independent Colleges. It has 
task forces on AIDS and on Psychiatric Disability. 

College Board 

ATP Services For Handicapped Students 

P.O. Box 6226 

Princeton, NJ 08541-6226 

(609) 771-7137 

(609) 771-7150 (Voice/TDD) 

Through its Admissions Testing Program, the 
College Board provides special arrangements to 
minimize the possible effects of disabilities on test 
performance. Two plans are available. Plan A 
(Special Accommodations) is for students with 
documented hearing, learning, physical, and/or 
visual disabilities. It permits special test editions, 
special answer sheets, extended testing time, aids, 
and flexible test dates. Plan B, which offers extended 
time only, is for those with documented learning 
disabilities. Plan B permits additional testing time 
for the SAT and TSWE (Test of Standard Written 
English). Call or write for Information for Students 
with Special Needs, or Information for Counselors 
and Admissions Officers. 

Educational Equity Concepts Resource Center 

114 East 32 Street 
New York, NY 10016 
(212) 725-1803 

The Resource Center furthers educational 
opportunities for women and girls with disabilities 
by systematically collecting information and making 
it available to educational institutions and 
organizations as well as to individuals. A database 
is being created and a Guide to Educational Services 
will result. It is a project of the Women's 
Educational Equity Act Program of the U.S. 
Department of Education. 



Educational Resources Information Center (ERIC) 

ERIC is an information system providing access to 
journal and document literature dealing with 
education in 16 specialized areas including: higher 
education; adult, career and vocational education; 
tests, measurement and evaluation; rural education 
and small schools; reading and communications 
skills; science, mathematics and environmental 
education; handicapped and gifted children; and 
teacher education. Entries are all annotated, and 
many can be obtained on microfiche or paper copy 
reproduction through ERIC. Reprints of most 
articles can be obtained through University 
Microfilms International. A computer search of the 
ERIC database can be made by subject. To access the 
system, go to one of the 800 subscribing libraries 
found throughout the country, or seek further 
information at the nearest college or university 
library. If unable to find information there, contact 
ERIC Clearinghouse on Higher Education, George 
Washington University, One Dupont Circle, NW, 
Suite 630, Washington, DC 20036, (202) 296-2597; or 
ERIC Clearinghouse on Handicapped And Gifted 
Children, 1920 Association Drive, Reston, VA 
22091, (703) 620-3660. 

Foundation for Science and the Handicapped 
(FSH) 

1141 Iroquois Drive #114 
Naperville, IL 60563 

FSH is an organization of scientists and 
professionals in various fields, many of whom have 
disabilities, who offer their skills to help solve 
disability-related problems. Inquirers will be 
referred to members who can respond to requests 
for guidance, problem clarification, or career 
suggestions. Members assist educational institutions 
and industry to create favorable conditions for 
people with disabilities. They also publish a book by 
S.P. Steamer, Able Scientists — Disabled Persons 
($12.95). Some grants are available to disabled 
students who are: college seniors or beyond; already 
accepted or enrolled in graduate or professional 
school; and are in science, mathematics or 
engineering. (Send requests for information on 
grants to: Rebecca F. Smith, 115 S. Brainard Avenue, 
LaGrange, IL 60625). 

Mobility International, USA (MIUSA) 

P.O. Box 3551 

Eugene, OR 97403 

(503) 343-1284 (Voice/TDD) 

MIUSA is the American office of the London-based 
organization founded in 1973 to integrate persons 
with disabilities into international educational 
exchange programs and travel. It offers members 
information and referral services. It has sponsored 
programs to Costa Rica, Germany, England, China, 
and the Soviet Union. Publications include: You 
Want to Go Where? — A Guide to China for Persons 



with Disabilities ($9.95), Global Perspectives on 
Disability — Curriculum, A World of Options for the 
1990's: A Guide to International Educational 
Exchange, Community Services, and Travel for 
Persons with Disabilities ($14.00 members; $16.00 
non-members); A Manual for Integrating Persons 
with Disabilities into International Education 
Exchange Programs ($16.00 members; $18.00 non- 
members); and Over the Rainbow, a quarterly 
newsletter available to persons/ organizations for 
$10.00 /year. MIUSA also sells two videos which 
demonstrate the important role that people with 
disabilities play in international educational 
exchange and travel ($49.00 each). These are 
available in English or Spanish, and with captions for 
deaf and hard of hearing persons. MIUSA's programs 
for 1991 include Mexico, China, and the USSR. 

National Association of Protection & Advocacy 
Systems (NAPAS) 

900 Second Street, NE, Suite 211 
Washington, DC 20002 
(202)408-9514 
(202)408-9521 (TDD) 

NAPAS is the membership association of the 
directors of three Federally-funded programs: the 
Protection & Advocacy Systems (P&As) for persons 
with Developmental Disabilities and the P&As for 
persons with Mental Illness, which provide legal 
advocacy for clients; and the Client Assistance 
Program (CAP), which assists clients of vocational 
rehabilitation services with eligibility and legal 
problems. NAPAS provides technical assistance and 
training for members and staffs, and it monitors 
Congressional and Federal agency activities related 
to disability issues and oversight administration. 

National Association of Vocational Education 
Special Needs Personnel (NAVESNP) 

c/o Athens Technical Institute 
U.S. Highway 29 North 
Athens, GA 30610 
(404) 549-2362 

NAVESNP is a membership organization of 
secondary and postvocational education 
professionals concerned with the education of 
disadvantaged students and students with 
disabilities or other special needs. The NAVESNP 
Journal is available quarterly to members 
($12.00/year), and there are five regional subgroups 
which meet in addition to the annual meeting. 
Consumers, advisers, and parents can obtain local 
referrals to people qualified to do vocational 
evaluations. 



National Clearinghouse for Professions in Special 
Education 

Information Center 

c/o Council for Exceptional Children 

1920 Association Drive 

Reston, VA 22091 

(703) 264-9475 

(703) 620-3660 (TDD) 

The Professions Clearinghouse is designed to 
encourage individuals to seek careers in the various 
fields related to the education of children and youth 
with disabilities. The Clearinghouse collects, 
synthesizes, and disseminates information 
regarding career opportunities, personnel supply 
and demand, and personnel preparation programs 
for increasing the supply of qualified professionals 
serving individuals with disabilities. The 
Clearinghouse also provides information, technical 
assistance, and linkages to promote local, state, and 
national efforts to collect useful information in these 
areas. 



National Committee for Citizens in Education 
(NCCE) 

10840 Little Patuxent Parkway, Suite 301 
Columbia, MD 21044-3199 
(301)997-9300 
(800) 638-9675 

NCCE is an organization devoted to improving the 
quality of public schools through increased public 
involvement. It provides information resources to 
parents and citizens for decision-making at the local 
level. A toll-free help line is available to parents, 10 
a.m. to 5 p.m. (EST). English and Spanish 
counselors are available. The newsletter, Network, 
appears 6 times per year; the Summer, 1988 issue 
featured disability-related technology resources. An 
"Access Printout" called College Opportunities for 
Learning Disabled Students, a catalogue, and a 
price list are available. 

National Home Study Council (NHSC) 

1601 18th Street NW 
Washington, DC 20009 
(202) 234-5100 

NHSC is a voluntary association of accredited home 
study schools, founded in 1926 to promote sound 
educational standards and ethical business practices 
within the home study field. Through its 
Accrediting Commission it recognizes nearly 100 
schools and centers which sponsor courses of study 
that can be accomplished by students on their own. 
These may include degree, as well as non-degree, 
programs. 



Technical Assistance for Special Populations 
Program (TASPP) 

National Center for Research in Vocational 

Education (NCRVE) 

University of Illinois Site 

345 Education Building 

1310 S. Sixth Street 

Champaign, IL 61820 

(217)333-0807 

TASPP, a service function of the National Center for 
Research in Vocational Education, University of 
California, Berkeley, is housed at the University of 
Illinois. TASPP is designed to assist in the 
improvement of vocational education programs for 
youth and adults with special needs. TASPP 
produces materials, responds to inquiries about 
vocational programs for special groups, and 
provides an array of services for professionals 
serving special populations in vocational education. 
Publications include the TASPP BULLETIN, a 
quarterly newsletter on critical issues and policy 
options; TASPP BRIEF, a topical paper highlighting 
the latest research, the newest resources, and 
exemplary programs for each theme explored by 
TASPP; and resource guides (available at cost 
recovery prices) on transition, youth at risk, teen 
parents, persons with limited English, and both 
rural and urban resources in vocational education. 
The BULLETIN, BRIEF, and TASPP computerized 
information searches are available at no charge. The 
list of NCRVE publications is available upon 
request. 



ADDITIONAL RESOURCES 

Community Colleges and Students with 
Disabilities, A Directory of Services and Programs 

(1988) was published jointly by the American 
Association of Community and Junior Colleges 
(AACJC) and the American Council on Education 
(ACE), through the HEATH Resource Center. It may 
be obtained by sending $5.00, plus $2.50 
postage/handling, to AACJC, One Dupont Circle, 
Suite 410, Washington, DC 20036. 

Directory of College Facilities and Services for the 
Disabled (1991) includes information about more 
than 1300 colleges and universities in the U.S. and 
Canada. Approximate numbers of students with 
disabilities, specific services available in each 
disability category, and other comments are given. 
While a directory is no substitute for actual visits to 
schools, this is an excellent resource with which to 
begin one's own investigation. It is available in 
many libraries or from the publisher for $95.00. 
Oryx also publishes other related titles of interest. 
The Directory is available from Oryx Press, 2214 
North Central at Encanto, Phoenix, AZ 85004. (602) 
254-6156. 



Handbook of Trade and Technical Careers and 
Training is a listing of accredited postsecondary 
career schools throughout the U.S. The schools are 
arranged according to states, and annotations tell 
what programs are offered at each school. It is 
available free from National Association of Trade 
and Technical Schools, 2251 Wisconsin Ave., NW, 
Washington, DC 20007. (202)333-1021. 

HEATH Resource Center offers the following 
relevant resources papers free of charge: 
Access to the Science and Engineering 

Laboratory and Classroom 
Career Planning and Placement Strategiesfor 

Postsecondary Students with Disabilities 
Guide to Postsecondary Vocational Education 

for Students with Disabilities 
How to Choose a College: Guide for the Student 

with a Disability 
Measuring Student Progress in the Classroom 
Strategies for Advising Students (with 

Disabilities) 
Vocational Rehabilitation Services — A Student 

Consumer's Guide 



FAMILY SUPPORT 

American Self-Help Clearinghouse 

St. Clares-Riverside Medical Center 

Pocono Road 

Denville, NJ 07834 

(201) 625-7101 

(201 ) 625-9053 (TDD) 

The Clearinghouse provides information on a wide 
range of self-help groups and state/local self-help 
clearinghouses. It publishes a directory of national 
and model groups, The Self-Help Sourcebook. Staff 
can provide consultation on starting new types of 
self-help networks or groups. 

Estate Planning for the Disabled (EPD) 

955 W. Center Avenue, Suite #12 
Manteca, CA 95336 
(209) 239-7558 
(800) 448-1071 

EPD is a national corporation the purpose of which 
is to counsel and assist parents of special needs 
children to develop (at the lowest possible cost) 
viable estate plans, letters of intent, wills, and 
special needs trusts. Estate teams consisting of a 
planner, attorney, and a CPA have been organized 
in several California locations and elsewhere in the 
country. Special payment plans and discounts are 
available to low-income families. Seminars, 
workshops, and resource lists are among the 
services offered. EPD has 58 offices in 34 states to 
provide local assistance. Callers from other states 
will be assisted or referred to appropriately trained 
and experienced attorneys and financial specialists. 



Life Services for the Handicapped, Inc. 

352 Park Avenue South 
New York, NY 10010 
(212) 532-6740 

Life Services is a national non-profit organization 
which helps families address issues in longterm 
planning for their members with severe disability. 
Through partnerships with a wide variety of local 
organizations, and some direct service, 
arrangements are made to utilize available 
resources. The goal is a high quality of life, without 
the loneliness and isolation so common in later 
years. 

National Information Center for Children and 
Youth with Disabilities (NICHCY) 

PO Box 1492 
Washington, DC 20013 
(703) 893-6061 (Voice) 
(703) 893-8614 (TDD) 
(800) 999-5599 

NICHCY is the national information and referral 
clearinghouse for families and professionals 
concerned with disability issues and children and 
youth, ages 22 and under. All services and single 
copies of all materials are free. 

National Parent Network on Disabilities (NPND) 

1600 Prince Street, Suite #115 
Alexandria, VA 22314-2836 
(703) 684-6763 (Voice/TDD) 

NPND is a non-profit organization dedicated to 
improving the lives of children, youth, and adults 
with disabilities and their families. Services that 
NPND currently provides, or will provide, include 
legislative representation, reference and referral, 
national and regional conferences, outreach to 
parents, materials development and distribution, 
and a database to link parents to local, state, 
regional, national and /or international services. 

Parent Educational Advocacy Training Center 
(PEATC) 

228 S. Pitt Street 

Alexandria, VA 22314 

(703) 836-2953 

(703) 836-3026 (TDD) 

(800) 869-6782 (MD, VA, and WV only) 

PEATC provides educational consultation services 
and conducts parent training courses in the 
Washington, DC metropolitan area, which are open 
to anyone able to attend from across the country. 
Participants in the three or four-day courses come in 
mixed pairs (i.e. parent/teacher or parent/VR 
counselor) and agree to return to their community 
and teach the curriculum just learned. Among their 
courses are "Next Steps: Planning for Employment," 
"Supported Employment Opportunities," and 
"World of Work. PEATC publishes a quarterly 



newsletter, The PEATC Press, which is available 
free of charge. 

Parents Helping Parents (PHP) 

535 Race Street 
San Jose, C A 95126 
(408) 288-5010 (Voice) 

The Center is a private non-profit organization 
providing: information referrals; a siblings 
program; professional and community networking 
programs; peer counseling; and support programs 
to families who have children with special health 
and educational needs. Through a grant from the 
U.S. Department of Health and Human Services and 
Maternal Child Health, it runs the National Center 
for Developing Parent-to-Parent Family Resource 
Centers. Manuals, booklets, and telephone or on-site 
consulting are available to new parent groups. 

Sibling Information Network 

991 Main Street, Suite 3A 
East Hartford, CT 06108 
(203) 282-7050 

The Network was established to assist individuals 
interested in the needs of families of persons with 
disabilities. It offers a state-by-state listing of sibling 
support groups. A newsletter, Sibling Information 
Network News, is published four times a year to 
describe projects, literature, research findings, and 
ideas useful to siblings of a person with a disability. 
Membership in the Network is $7.00/year for 
individuals and $15.00/year for organizations. 

Specialized Training of Military Parents (STOMP) 

12208 Pacific Highway, SE 
Tacoma, WA 98499 
(206) 588-1741 

1851 Ram Runway, Suite 102 
College Park, GA 30337 
(404) 761-2745 

The STOMP Project provides individual assistance 
to families; workshops; assistance and site visits to 
other Parent Training and Information (PTI) centers; 
and national workshops for Military Parent Leaders. 
Topics of expertise include P.L. 94-142, P.L. 99457, 
Section 504, overseas schools, Section VI schools), 
CHAMPUS, and discrimination regulations for 
Armed Services. STOMP can go into military bases 
and work with hospitals, commanders, Exceptional 
Family Member Programs (EFMP), and other 
service providers. Families can call the project 
collect for assistance. 



Technical Assistance for Parent Programs (TAPP) 

Federation for Children with Special Needs 
312 Stuart Street 
Boston,MA 02116 
(617)482-2915 

The TAPP Network is federally funded with Special 
Needs and the U.S. Department of Education) to 
provide training to parent groups through four 
regional centers. It is a project of the National 
Network of Parent Centers described above. TAPP 
publishes Coalition Quarterly; it has a list of 
mopnographs; and it conducts national and regional 
conferences. The Regional Centers will refer callers 
to the closest parent group. They can provide 
information about parenting youth in transition, 
either from school to work or from school to further 
education and training. 

Northeast Regional Center 
Parent Information Center 
P.O. Box 1422, Concord, NH 03302 
(603) 224-7005 

Midwest Regional Center 
PACER Center 
4826 Chicago Ave., South 
Minneapolis, MN 55417 
(612) 827-2966 

South Regional Center 
PEP, Georgia ARC 
1851 Ram Runway, #104 
College Park, GA 30337 
(404) 761-3150 

West Regional Center 
Washington State PAVE 
6316 South 12th St. 
Tacoma, WA 98465 
(206) 565-2266 



ADDITIONAL RESOURCES 

Beach Center on Families and Disability, Bureau of 
Child Research, University of Kansas, 4138 Ha worth 
Hall, Lawrence, KS 66045 (913) 864-7600 (A 
Research and Training Center funded by the U.S. 
Office of Education, co-directed by Ann Turnbull 
and H. Rutherford Turnbull). 

Disability and the Family, A Guide to Decisions 
for Adulthood (1989), by Ann Turnbull, H. 
Rutherford Turnbull and staff at the Beach Center 
on Families and Disability at the Bureau of Child 
Research, University of Kansas. This comprehensive 
book introduces guidelines and strategies for 
making legally and financially effective plans for the 
future of the youth with developmental and other 
severe disabilities. ($29.00) Paul H. Brookes 
Publishing, Co., P.O. Box 10624, Baltimore, MD 
21285. 

Minerva Press, Inc. offers a series of pamphlets 
covering a wide range of topics of interest to 
families with a member who has a disability or 
chronic illness. A few examples relevant to the 
HEATH audience include Living with a Learning 
Disability, Attention Deficit Disorder in 
Teenagers and Young People, Helping Families 
Cope with Mental Illness, Understanding AIDS, 
and Parenting Through the College Years. ($1.00 
each or bulk rates, plus postage) Minerva Press, Inc., 
6653 Andersonville Road, Waterford, MI 48095 
(313) 623-1566. 



See also: 



Specific Disability Sections 



COMMUNITY INTEGRATION 



EMPLOYMENT 

70001, Training and Employment, Ltd. 

501 School Street, SW, Suite 600 
Washington, DC 20024 
(202) 484-0103 

70001 is a national nonprofit organization operating 
local programs for at-risk youth DC between 18 and 
21 years of age in many cities across the country, 
including Drop-Out Recovery Programs and Drop- 
Out Prevention Programs. Call or write to obtain a 
referral to a local group, or to receive their free 
bimonthly newsletter, Going Places. 

Association of Persons in Supported Employment 
(APSE) 

P.O. Box 27523 
Richmond, VA 23261 
(804) 266-6950 

APSE was formed primarily to provide support and 
information to people who implement supported 
employment such as job coaches, enclave and 
mobile crew supervisors, small business 
entrepreneurs, and program managers. The staff 
searches for integrated employment opportunities 
for citizens with severe disabilities by maintaining a 
partnership of the various participants in Supported 
Employment. Members receive The Advance, the 
APSE newsletter. They are periodically notified 
about training opportunities, policy changes, and 
legislative issues. 

Job Accommodation Network (JAN) 

West Virginia University 
809 Allen Hall 
Morgantown, WV 26506 
(304) 293-7186 
(800) 526-7234 

JAN is an international information network and 
consulting resource which provides information 
about employment issues to employers, 
rehabilitation professionals, and persons with 
disabilities. Callers should be prepared to explain 
the specific problem and job circumstances. 
Sponsored by President's Committee on 
Employment of People With Disabilities, the 
Network is operated by West Virginia University 
Rehabilitation Research and Training Center. 
Brochures, printed materials, and a newsletter are 
available free of charge. 



Job Opportunities for the Blind (JOB) 

National Federation of the Blind 
1800 Johnson Street 
Baltimore, MD 21230 
(301) 659-9314 
(800) 638-7518 

JOB is the nationwide job listing and job referral 
system of the NFB, a service available without 
charge. JOB has more than 40 free publications, 
among which are: Blind People at Work, and 
Technical Assistance Guide for Employers. The 
Recorded Bulletin is sent to registered applicants 
and includes articles about careers and employment, 
as well as job listing. 

Mainstream, Inc. 

1030 15th Street, NW, Suite 1010 
Washington, DC 20005 
(202) 898-1400 (Voice/TDD) 

This nonprofit organization works with employers 
and service providers around the country to 
increase employment opportunities for persons with 
disabilities. Mainstream produces publications and 
provides in-house training, conferences and 
technical assistance on complying with the 
Americans with Disabilities Act. Mainstream 
operates its own placement programs in 
Washington, DC, and Dallas, TX. 

National Center on Disability Services (NCDS) 

201 I.U. Willets Road 
Albertson, NY 11507 
(516) 747-5400 
(516) 747-5355 (TDD) 

NCDS is a non-profit organization which engages in 
education, research, vocational counseling, job 
training and placement for children and adults with 
disabilities. There are four main divisions: (1) The 
Henry Viscardi School is for children with severe 
disabilities (pre K-12 grade); and it has a community 
program of adult/continuing education which 
includes some courses for people with disabilities 
and others where people with and without 
disabilities learn together. (2) Vocational 
Rehabilitation Services offers counseling, training 
and placement of adults with disabilities. (3) 
Research & Training Institute education, transition 
from school-to-work, employment and career 
development of persons with disabilities. (4) 
Abilities, Health, and Rehabilitation Services runs 
an outpatient service. Copies of the annual report 
and other information is available upon request. 



National Center on Employment of the Deaf 
(NCED) 

National Technical Institute for the Deaf 

Rochester Institute of Technology (RIT) 

One Lomb Memorial Drive 

Rochester, NY 14623 

(716) 475-6834 

(716) 475-6205 (TDD) 

Operated by the National Technical Institute for the 
Deaf, the National Center on Employment of the 
Deaf (NCED), was established to promote successful 
employment of Rochester Institute of Technology's 
deaf graduates. NCED also offers training and 
consultations to employers and professionals 
working with deaf persons. 

President's Committee on Employment of People 

with Disabilities 

1111 20th Street, NW, Suite 636 

Washington, DC 20036 

(202) 653-5044 

(202) 653-5050 (TDD) 

The President's Committee is a national source of 
information and assistance concerning employment 
and people with disabilities. It can refer callers to 
committees at the state and local levels. The 
Committee sponsors the observance of National 
Disability Employment Awareness Month 
(October), an annual conference on the employment 
of people with disabilities, seminars, and workshops 
on a range of issues concerning employment. It 
publishes and distributes a newsletter, Tips and 
Trends, and a quarterly magazine, Worklife. The 
Committee also sponsors the Job Accommodation 
Network listed above. 



INDEPENDENT LIVING 

Independent Living Research Utilization Program 
(ILRU) 

3400 Bissonnet, Suite 101 
Houston, TX 77005 
(713) 666-6244 (Voice) 
(713) 666-0643 (TDD) 

ILRU Program is a national resource center for 
independent living, and is a federally funded 
research and training center on improving 
effectiveness in independent living centers. It 
produces resource materials, develops and conducts 
training programs on independent living issues, 
provides technical assistance and consultation to 
independent living centers, conducts a variety of 
research projects on factors affecting independence, 
and publishes a bimonthly newsletter which 
addresses matters affecting the independent living 
field. The major resource is the Directory of 
Independent Living Programs, which lists 
programs on a state-by-state basis ($8.50 prepaid). 



Individuals are invited to contact ILRU for free 
referral to projects near their communities. Write for 
complete publications list. 

National Council on Independent Living (NCIL) 

310 S. Peoria Street, Suite 201 

Chicago, IL 60607 

(312) 226-1006 (Voice/TDD) 

NCIL is a national membership association for 
independent living centers and supporters. It 
disseminates information about independent living 
matters and relevant legislation through its 
membership network. It can provide referral to a 
local program for consumers, up-to-date practical 
information for professionals, and advice to persons 
interested in starting an independent living center. 

The Research and Training Center on Independent 
Living (RTC/IL) 

University of Kansas 
BCR3111 Haworth 
Lawrence, KS 66045 
(913) 864-4095 Voice/TDD 

The Research and Training Center on Independent 
Living was established in 1980 under a grant from 
NIDRR. Its mission is to develop, test, and 
disseminate materials to over 350 independent 
living centers (ILCs) nationwide, who serve 
consumers with various types of disabilities. 
RTC/IL research-tested materials are developed 
with extensive input from consumers with 
disabilities. The center has training materials and 
workshops in Personal and Systems Advocacy; ILC 
Evaluation; Consumer Management of Personal 
Assistants; Self-Help Group Leader Training; 
Positive Media Portrayal of Persons with 
Disabilities; Mentoring; Developing Slike 
Presentations to Promote Community Support; and 
other material related to independent living. The 
RTC/IL conducts and annual national Independent 
Living Conference for ILCs and people with 
disabilities, and publishes a quarterly newsletter, 
The Independent Living Forum. A complete 
bibliography of materials is available free upon 
request. 

Social Security Administration 

U.S. Department of Health and Human Services 
Local Telephone Directory: 

U.S. Government Section (Blue Pages) 
(800) 234-5772 
(800) 325-0778 (TDD) 

Local offices of SSA across the country have 
pamphlets about benefits relating to disability. Staff 
can answer questions relating to SSI and SSDI over 
the phone, as well as in writing. 



10 



Travelin' Talk 

PO Box 3534 

Clarksville, TN 37043-3534 
(615) 552-6670 
(615) 552-1182 FAX 

Travelin' Talk is an international network of people 
providing assistance to travelers with disabilities by 
sharing their knowledge and /or extending services 
travelers may need while visiting, passing through, 
or planning their trips. Quarterly newsletter, 
Travelin' Talk is available to share resources, tips 
and stories of ways people are helping each other. 

Typewriting Institute for the Handicapped 

3102 West Augusta Avenue 
Phoenix, AZ 85051 
(602) 939-5344 

The Institute is a for-profit company which makes 
the Dvorak one-hand keyboard for typewriters and 
word processors that are rearranged to 
accommodate one-handed typing. Other products to 
promote independence listed in the catalogue 
include two sizes of large print typewriters for 
people with low vision and "end line light" for the 
deaf typist. 



ADDITIONAL RESOURCES 

Accent on Living is a magazine which focuses on 
needs of people with physical handicaps. Articles 
cover organizations, new products and inventions 
for people with disabilities, and ideas for recreation 
and daily living ($6.00/year). Also available: 
Buyer's Guide (1988-89 edition, $10.95), a 146 page 
source-book on producats and services, and a 
computerized retrieval system for specific products 
or services. Write Accent on Living, Cheever 
Publishing, Inc., P.O. Box 700, Bloomington, IL 
61702(309)378-2961. 

Independent Living, Careers & the disAbled, 
Equal Opportunity, The Collegiate Career Woman, 
The Minority Engineer, and The Woman Engineer 

are all publications of Equal Opportunity 
Publications, Inc. (EOP). EOP is a winner of the 
President's Committee on Employment of Persons 
With Disabilities' Media Award. For subscription 
information, write EOP, 44 Broadway, Greenlawn, 
NY 11740. (516)261-8917. 

See also: 

American Self-Help Clearinghouse 
Self-Help for Hard of Hearing People 
National Association of Protection and 

Advocacy Systems 
Technology section, entries related to assistive 

technology 
National Alliance of Blind Students 
"Jobs, Jobs, Jobs" Program 



REHABILITATION 

Council of State Administrators of 
Vocational Rehabilitation (CSAVR) 

1055 Thomas Jefferson Street, NW 
Washington, DC 20007 
(202) 638-4634 

CSAVR is the membership organization of the State 
directors of vocational rehabilitation programs. A 
caller can be referred to the appropriate State office 
for further assistance. 

ICD — International Center for the Disabled 

340 East 24th Street 
New York, NY 10010 
(212) 679-0100 
(212) 889-0372 (TDD) 

ICD is a comprehensive outpatient rehabilitation 
facility offering half-day to two-week professional 
education courses/workshops on a broad range of 
medical and vocational evaluation, day treatment 
for dementia, cognitive rehabilitation for head 
injury survivors and learning disabilities. A 
catalogue of offerings is available. 

National Clearing House of Rehabilitation 
Training Materials (NCHRTM) 

Oklahoma State University 
816 West Sixth Street 
Stillwater, OK 74078 
(405) 624-7650 

NCHRTM disseminates information on vocational 
rehabilitation with primary concentration on 
training materials for use by educators of 
rehabilitation practitioners and in-service training 
personnel. Recognizing the critical nature of the 
transitional period between education and 
employment, materials from special education are 
included. The resources include print and media 
format not found in traditional sources. The 
NCHRTM Memorandum is issued quarterly, listing 
materials available for a cost recovery fee. This 
service, located at Oklahoma State University, is the 
clearinghouse for Rehabilitation Services 
Administration. 

National Rehabilitation Association (NRA) 

633 South Washington Street 
Alexandria, V A 22314 
(703) 836-0850 (Voice) 
(703) 836-0852 (TDD) 

The NRA membership is comprised of persons with 
disabilities, professional rehabilitation workers, and 
others from the fields of education, medicine, 
business, and industry. Members receive eight 
newsletters annually and the Journal of 
Rehabilitation quarterly. NRA is active in areas 
such as advocacy, legislative design, and the 



11 



development of education and training programs 
for people with disabilities. The separate 
professional divisions are Job Placement, 
Rehabilitation Counseling, Rehabilitation 
Administration, Vocational Evaluation and Work 
Adjustment, Independent Living, Rehabilitation 
Instructors, and Support Staff. The Association has 
60 affiliate chapters throughout the country. 

National Rehabilitation Information Center 
(NARIC) 

8455 Colesville Road, Suite 935 
Silver Spring, MD 20910 
(301) 588-9284 (Voice/TDD) 
(800) 346-2742 (Voice/TDD) 

NARIC is a library and information center on 
disability and rehabilitation founded by the 
National Institute on Disability and Rehabilitation 
Research to collect and disseminate information on 
disability and rehabilitation. NARIC's library 
contains materials on all aspects of physical and 
mental disabilities. Information specialists provide 
quick reference and referral services, searches of 
NARIC's database, REHABDATA, and photocopies 
of documents. NARIC publishes a free newsletter, 
NARIC Quarterly, and several directories, 
including the NIDRR Program Directory. 



Rehabilitation International (RI) 

25 East 21st Steet 
New York, NY 10018 
(212)420-1500 

RI is a federation of 135 organizations in 81 
countries conducting programs to assist people with 
disabilities and all who work for prevention, 
rehabilitation, and integration. It publishes the 
International Rehabilitation Review to report on 
worldwide scientific developments in the fields of 
disability, rehabilitation, and related fields. 



See Also: 



Technology, RESNA 
Resources for Rehabilitation 



ADDITIONAL RESOURCES 

There are 38 Rehabilitation Research and Training 
Centers (RTCs), funded by the U.S. Department of 
Education, all on topics related to the disability 
field. Examples are Children/Families, Community 
Living, Deafness, Employment/Employability, 
Independent Living, Psychiatric Rehabilitation, 
Spinal Cord Injury, and Traumatic Brain Injury. 
These are listed in the Spring, 1989, NARIC 
Quarterly, available free of charge from NARIC (see 
above). 



12 



DISABILITY-SPECIFIC ORGANIZATIONS 



CHRONIC ILLNESS 



AIDS Action Council 

2033 M Street, NW, Suite 802 
Washington, DC 20036 
(202) 293-2886 

The Council is an advocacy group which monitors 
legislation and public policy affecting people with 
AIDS. It provides a voice for community-based 
service organizations rather than direct service 
referral for individuals. A legislative newsletter is 
available. 

Immune Deficiency Foundation (IDF) 

P.O. Box 586 
Columbia, MD 21045 
(301)461-3127 

The goal of the IDF is to promote increased research, 
medical training, and public education on and for 
the primary immune deficiency disorders. Through 
a national office and several regional chapters, the 
Foundation has developed programs for patients 
and parents, professional education, research 
support, and legislative interaction. Its focus is on 
the genetic, primary immunodeficiency diseases 
(rather than on others such as AIDS and Multiple 
Sclerosis). Affiliate groups can be found in 
California, Florida, Illinois, Missouri, New England, 
Ohio, Oklahoma, Texas and Utah. 

Institute on Alcohol, Drugs and Disability (IADD) 

2165 Bunker Hill Drive 
San Mateo, CA 94402 
(415) 578-8047 (Voice/TDD) 

IADD addresses the fact that people with disabilities 
frequently are chemically dependent, or they are at 
risk of becoming dependent. The organization 
advocates to increase the accessibility of alcohol and 
other drug abuse prevention and treatment 
programs that do exist and to increase the number 
available. It has conducted the California Alcohol, 
Drug and Disability Study (CALADDS), which 
generated data and recommendations for improving 
accessibility to the California alcohol and drug 
service system. Quarterly, the Coalition publishes 
The Seed to inform professionals and consumers 
about the connection between alcohol, drugs, and 
disability. The Institute is organizing a national 
policy development and leadership symposium 
(July - August 1991) and will publish a proceedings 
of that event. The organization provides technical 
assistance to all interested in improving access to 
care and prevention services. 



National AIDS Information Clearinghouse (NAIC) 

P.O.Box 6003 
Rockville, MD 20850 
(301)762-5111 
(800)342-2437 
(800)344-7432 (Spanish) 
(800)458-5231 (professionals) 
(800)243-7889 (TDD) 

NAIC is a comprehensive information service for 
health professionals, state and local AIDS program 
managers, and others responsible for reaching the 
public with AIDS information. Sponsored by the 
Centers for Disease Control, NAIC maintains the 
toll-free lines above. Additional materials are 
available by writing. 

National Center For Youth with Disabilities 
(NCYD) 

Adolescent Health Program 

University of Minnesota 

Box 721-UMHC 

Harvard Street at East River Road 

Minneapolis, MN 55455 

(612) 626-2825 

(612) 624-3939 (TDD) 

(800) 333-6293 

NCYD, a collaborative program of the Society for 
Adolescent Medicine and the Adolescent Health 
program at the University of Minnesota, is a 
technical assistance and information resource center 
focusing on adolescents with chronic illness and 
disability and the issues that surround their 
transition to adult life. NCYD's national Resource 
Library is an on-line computerized database 
containing interdisciplinary information on current 
research, model programs, training and educational 
materials, federal and state law and legislation, and 
a technical assistance network. The Library's 
information may be accessed directly with a 
microcomputer and modem or my calling to request 
a database search by an information specialist. 
NCYD's publications include topical annotated 
bibliographies, Cydline Reviews; a quarterly 
newsletter, Connections; and brief fact sheets. 

National Chronic Pain Outreach 
Association, Inc. (NCPOA) 

7979 Old Georgetown Road, Suite 100 
Bethesda, MD 20814-2429 
(301)652-4948 

NCPOA is a non-profit organization whose purpose 
is to disseminate information about chronic pain 
and its management. They operate an information 
clearinghouse which publishes a quarterly 
newsletter, Lifeline; sponsors public information 
efforts; and develops local support groups for 



13 



people with chronic pain and their families. Low- 
cost pamphlets, publications, and audio- and video- 
cassette tapes are available. 



Mental Retardation; and News & Notes, a quarterly 
newsletter. Regional units have additional services, 
including some scholarship aid for students. 



National Health Information Center 

O.D.P.H.P. 

P.O.Box 1133 

Washington, DC 20013-1133 

(800) 336-4797 

The Information Center welcomes inquiries from 
consumers and professionals interested in health- 
related disability issues. Referrals are provided to 
appropriate organizations. It is a service of the U.S. 
Department of Health and Human Services' Office 
of Disease Prevention and Health Promotion. 
Publications include: Health Information 
Resources in Federal Government; Staying 
Healthy: A Bibliography of Health Promotion 
Materials, and Health Finders such as: Selected 
Federal Health Information Clearinghouses and 
Information Centers and Toll-Free Numbers for 
Health Information (handling fee charged). 

National Organization for Rare Disorders, Inc. 
(NORD) 

P.O. Box 8923 

New Fairfield, CT 06812-1783 

(203) 746-6518 

(800) 999-6673 

NORD is a non-profit voluntary agency composed 
of national health organizations, scientific 
researchers, physicians, and individuals dedicated 
to the interests of people concerned about rare 
debilitating disorders. NORD has an information 
and referral service and a networking program to 
put individuals in touch with others suffering from 
the same or similar illnesses. It monitors the Orphan 
Drug Act to promote the development of new 
treatments for rare disorders. Orphan Disease 
Update is their quarterly publication, and the Rare 
Disease Database is available on CompuServe. 



DEVELOPMENT DISABILITIES 

American Association on Mental Retardation 
(AAMR) 

1719 Kalorama Road, NW 
Washington, DC 20009 
(202) 387-1719 
(800) 424-3688 

AAMR is an interdisciplinary association of 
professionals and concerned individuals in the field 
of mental retardation. National and regional 
meetings, as well as publications, serve to inform 
members about the latest research and practices. 
Publications include the American Journal on 
Mental Retardation; a bimonthly journal called 



Association for Retarded Citizens (ARC) 

500 E. Border Street, 3rd Floor 
Arlington,TX 76010 
(817) 640-0204 
(800) 433-5255 

ARC is a national grassroots organization with over 
160,000 members and 1300 chapters covering 48 
states. Activities include training volunteers to work 
with mentally retarded persons; developing 
demonstration models in areas of education, 
training and residence; and furthering employment 
opportunities. Contact ARC for subscription to their 
newsletter, the arc, for referral to state and local 
chapters, and for information about model 
programs or training centers. 

Autism Society of America 

8601 Georgia Avenue, Suite 503 
Silver Spring, MD 20910 
(301)565-0433 

The Society is dedicated to the education and 
welfare of persons with severe disorders of 
communication and behavior. With about 200 local 
chapters and state societies, it is a resource to people 
across the country. Its Information and Referral 
Service, list of books, and periodical reprints about 
autism are available through the national office 
which invites written requests for specific 
information and referral. Its quarterly membership 
newsletter is The Advocate. 

Cystic Fibrosis Foundation 

6931 Arlington Road 
Bethesda, MD 20814 
(301)951-4422 
(800) 344-4823 

The Foundation exists to assure the development of 
the means to control and prevent cystic fibrosis, and 
to improve the quality of life for people with the 
disease. It supports research; accredits a network of 
Care Centers rationwide; develops materials to help 
patients, families and the public to understand 
cystic fibrosis; and seeks to affect public policy. 

Epilepsy Foundation of America 

4351 Garden City Drive 

Landover, MD 20785 

(301)459-3700 

(800) 332-1000 (Consumers) 

(800) 322-4050 (Professional Library) 

The Foundation and its local affiliates support many 
programs of information, referral, public and 
professional education, employment assistance, 
advocacy and self-help. The Foundation publishes 
pamphlets, brochures, a 12-page newsletter, and 



14 



offers a membership program. The National 
Epilepsy Library provides technical information 
services to professionals. The national office also 
provides patient information and referral, supports 
medical research, works with government agencies, 
and works with Congress to advance the interests of 
people with epilepsy. 

National Down Syndrome Congress 

1800 Dempster 
Park Ridge, IL 60068 
(708) 823-7550 
(800) 232-6372 

NDSC is a national non-profit organization of 
parents and professionals concerned with 
promoting the interests of persons with down 
syndrome through information dissemination, 
parent support, and advocacy. 

Spina Bifida Association of America (SBAA) 

1700 Rockville Pike, Suite 540 
Rockville, MD 20852 
(301)770-7222 
(800) 621-3141 

SBAA is an association of parents, adults with this 
birth defect, and professionals. It has a network 
which provides support and information through 
chapters across the country. Local and national 
legislation is monitored; conferences, workshops, 
social and educational programs are planned; much 
print and audio-visual information is available; and 
the newsletter, INSIGHTS, is available to members. 

TASH: The Association for Persons with Severe 
Handicaps 

7010 Roosevelt Way, NE 
Seattle, WA 98115 
(206) 523-8446 

TASH is a membership organization dedicated to 
improving the living, learning, and working 
environments of people with severe disabilities. The 
Association has chapters at the local level; publishes 
a quarterly journal, JASH, with reports on research 
and trends in services, a monthly Newsletter, and 
the DC Update every other month; offers 
information and referral services; holds an annual 
conference; and disseminates publications. Request 
the free publications list. TASH also offers technical 
assistance nationwide to people who are both deaf 
and blind. 



United Cerebral Palsy Associations 

66 East 34th Street 
New York, NY 10016 
(212) 481-6300 
(800) 872-1827 

UCP Community Services Division 
1522 K Street, NW, Suite 1112 
Washington, DC 20005 
(202) 842-1266 

UCP is a nationwide direct service organization 
with over 225 affiliates, each of which provides its 
own array of services ranging from pre-school to 
adult work programs. UCP sponsors research and 
advocacy, as well as publishing pamphlets, articles, 
film/slide presentations, and display materials. 
Some are free; others are available for a small fee, 
and several are in Spanish as well as English. A 
quarterly magazine, UCP News, is available by 
request to the New York address. The monthly 
Word From Washington, which tracks legislation 
that impacts disabled people, is available from the 
UCP Community Services Division. (Parents of 
persons with disabilities $25.00/year; all others, 
$55.00/year). 

Young Adult Institute (YAI) 

460 West 34th Street 
New York, NY 10001 
(212) 563-7474 

YAI is a non-profit professional organization 
serving developmentally disabled children and 
adults in many programs throughout the New York 
metropolitan area. Available on a national basis are: 
videotapes, manuals, and guides for training 
parents and professionals, including the widely 
acclaimed videos On Our Own and Children With 
Special Needs. YAI holds an annual international 
conference. A recent addition to training materials 
focused on young adults with developmental 
disabilities and AIDS. Some services and materials 
are free of charge, and a catalogue is available. 



ADDITIONAL RESOURCES 

See also: 

Association of Persons in Supported Employment 
Mental Health Law Project 
National Association of Protection & Advocacy 
Systems 



15 



HEARING IMPAIRMENT 

American Deafness and Rehabilitation Association 
(ADARA) 

P.O.Box 25154 

Little Rock, AR 72225 

(501)663-7074 

ADARA is a network of professionals and 
community persons who serve people who are deaf 
or hard of hearing. Service areas include 
rehabilitation, mental health, education, social work, 
speech therapy, medicine, psychiatry, psychology, 
and others. Members are offered forums, 
conferences, workshops, and publications. 
Quarterly, it publishes a Journal and The ADARA 
Update; occasional monographs such as the recent 
At the Crossroads: A Celebration of Diversity, 
may also be ordered. A publications list is available, 
as is referral service about careers, university 
programs, job opportunities, and general 
information. 

American Associaton of the Deaf-Blind (AADB) 

814 Thayer Avenue 
Silver Spring, MD 20910 
(301) 588-6545 

AADB is a national consumer advocacy 
organization for people who have combined hearing 
and vision impairments. It holds an annual 
convention and has chapters around the country. 
The organization also provides technical assistance 
to deaf-blind persons, families, educators, and 
service providers. Annual dues are $12.00. 

Alexander Graham Bell Association for the Deaf 
(AGBA) 

3417 Volta Place, NW 
Washington, DC 20007 
(202) 337-5220 (Voice/TDD) 

AGBA follows Bell's philosophy of mainstreaming 
deaf children by emphasizing oral-deaf education. 
Thus, lip reading and use of residual hearing for 
oral communication differentiates this group from 
those who use manual communication (sign 
language). Membership and materials are available 
for parents, professionals, and oral-deaf adults. 
Volta Review is a journal for professionals, and 
Newsounds is their newsletter for members. 
Descriptive literature and a publications list are 
available by request. AGBA sponsors a children's 
rights advocacy network. Financial aid programs 
are available for oral hearing impaired people, 
infants through college-age. 



American Speech-Language-Hearing Association 
(ASHA) 

10801 Rockville Pike 
Rockville, MD 20852 
(301) 897-5700 (Voice/TDD) 
(800) 638-8255 (Consumers) 

ASHA is the professional, scientific and 
credentialing association for speech-language 
pathologists and audiologists, who provide services 
to people with speech, language and hearing 
disorders. Brochures, information packets and 
professional referrals of speech, language and 
hearing services are available. Programs and 
services are offered to ASHA members who work in 
different settings, including education and health 
care settings. ASHA follows legislation relevant to 
people with communication disorders. Through its 
public information department it provides public 
education materials about communication disorders 
and professional treatment. 

HEAR YOU ARE, INC. (HYAI) 

4 Musconetcong Avenue 

Stanhope, NJ 07874 

(201) 347-7662 (Voice/TDD) 

HYAI provides assistance with assistive technology 
devices for people who are deaf or hard of hearing. 
Devices available through a mail order catalogue 
include FM systems, telephone and doorbell 
devices, television amplifiers, smoke-alert devices, 
hearing protection, infrared systems, closed 
captioning devices and more. Videotapes, therapy 
activities, motivational rewards, and books on 
hearing-related subjects are also available. Schools 
and businesses may request workshops on subjects 
related to hearing impairment. 

Helen Keller National Center for 
Deaf-Blind Youths and Adults (HKNC) 

111 Middle Neck Road 
Sands Point, NY 11050 
(516) 944-8900 (Voice/TDD) 

The Helen Keller National Center provides 
diagnostic evaluation, short-term comprehensive 
rehabilitation and personal adjustment training, job 
preparation and placement for deaf-blind youths 
and adults 18 years of age and older. It conducts an 
extensive network of field services through regional 
offices, affiliate programs, and a National Training 
Team. There is a Technical Assistance Center 
headquartered in the New York office. It offers 
services for elderly deaf-blind persons and has a 
National Parent and Family service project. 
Publications include the HKNC TAC News. 



16 



Modern Talking Picture Services, Inc. (MTPS) 

5000 Park Street North 
St. Petersburg, FL 33709 
(813) 545-8781 
(800) 237-6213 (Voice/TDD) 

This company distributes captioned films and 
videos for educational and general interest 
purposes. To obtain an educational film in 
captioned form, one hearing impaired student must 
be among the users. To obtain a general interest 
item, a group of hearing impaired persons is a 
prerequisite. Contact MTPS for an application. 

National Association of the Deaf (NAD) 

814 Thayer Avenue 

Silver Spring, MD 20910 

(301)587-1788 

(301) 587-1789 (TDD) 

In addition to providing information on deafness 
and hearing loss, the NAD publishes deafness- 
related materials including the Broadcaster 
($10.00/year) and the Deaf American ($20.00/year). 
NAD provides advocacy and legal consultations, 
regional workshops in leadership training, and 
youth programs. Individual membership is $25.00 
annually and includes subscriptions to the above 
publications, as well as discounts on other NAD 
published materials purchased for personal use. 

National Captioning Institute (NCI) 

5203 Leesburg Pike, Suite 1500 
Falls Church, VA 22041 
(703) 998-2400 
(800) 533-9673 (Voice) 
(800) 321-8337 (TDD) 

NCI is a non-profit corporation whose goal is to 
expand the captioned television service, The staff 
produces captions for television programs. NCI also 
designs, manufactures, and distributes the 
TeleCaption decoder device, which is attached to 
the user's television set (under $200.00 each). 

National Information Center on Deafness (NICD) 

Gallaudet University 

800 Florida Avenue, NE 

Washington, DC 20002-3695 

(202) 651-5051 

(202) 651-5052 (TDD) 

The National Information Center on Deafness, 
located on the Gallaudet University campus, is a 
centralized source of accurate, up-to-date, objective 
information on topics dealing with deafness and 
hearing loss. NICD responds to questions from the 
general public and hearing impaired people, their 
families, friends, and professionals who work with 
them. Through its own efforts and through 
continued collaboration with agencies and 
organizations serving hearing impaired people, 
NICD collects, develops, and disseminates 



information on all aspects of hearing loss and 
programs and services offered to deaf and hard of 
hearing persons across the nation. 

National Technical Institute for the Deaf (NTID) 

Lyndon Baines Johnson Building 

PO Box 9887 

Rochester, NY 14623-0887 

(716) 475-6400 

(716)475-2181 (TDD) 

NTID is a college of Rochester Institute of 
Technology (RIT). Created by Congress and funded 
primarily by the U.S. Department of Education, 
NTID educates large numbers of deaf students 
within a college campus planned principally for 
hearing students; this includes deaf students from 
all 50 states, the District of Columbia, several U.S. 
territories, and a number of other countries. In 
addition to the academic programs based within 
NTID, RIT's students also benefit from nearly 200 
technical and professional courses of study offered 
through RIT's other eight colleges. 

Registry of Interpreters for the Deaf (RID) 

8719 Colesville Road 
Suite #310 

Silver Spring, MD 20910 
(301) 608-0050 (Voice/TDD) 

RID is a membership organization with almost 4,000 
members, who include professional interpreters and 
transliterators, interpreter/transliterator educators, 
students, persons with deafness or hearing 
impairment and professionals in related fields. The 
purpose of RID is to initiate, sponsor, promote, and 
execute policies and activities that will further the 
profession of interpretation of American Sign 
Language and the transliteration of English. RID has 
57 affiliate chapters in the United States and 
Canada. 

Self-Help for Hard of Hearing People, Inc. (SHHH) 

7800 Wisconsin Avenue 

Bethesda, MD 20814 

(301)657-2248 

(301) 657-2249 (TDD) 

SHHH is a volunteer, international organization of 
hard of hearing people, their relatives and friends. It 
is a non-profit, non-sectarian educational 
organization devoted to the welfare and interests of 
those with partial hearing who are committed to 
participating in the hearing world. 

Telecommunications for the Deaf, Inc. (TDI) 

814 Thayer Avenue 
Silver Spring, MD 20910 
(301) 589-3006 (Voice/TDD) 

TDI addresses issues related to telecommunications 
for the deaf. In addition to publishing an annual 
national directory of TDD numbers, it is a non-profit 



17 



membership organization providing information 
and assistance on telecommunication issues. The 
annual directory is $12.50. Membership fees are 
$15.00 for an individual and $30 for an organization. 
The quarterly newsletter, GA-SK, covers 
information about telecommunications. TDI offers 
to be a link between a consumer who is developing 
a visual communication device and a manufacturer 
willing to produce it. 



ADDITIONAL RESOURCES 

College and Career Programs for Deaf Students 

(annual) describes postsecondary programs for 
hearing impaired students across the United States. 
It describes the type of education and support 
services offered. ($12.95) Write Center for 
Assessment and Demographic Studies, Gallaudet 
University, 800 Florida Avenue, NE, Washington, 
DC 20002. 

Students Who Are Deaf or Hard of Hearing in 
Postsecondary Education. 

HEATH Resource Center. 



See also: 

AHSSPPE Special Interest Group 

National Center on Employment of the Deaf 

National Center for Law and the Deaf 

LEARNING DISABILITIES 

Center on Postsecondary Education for 
Students with Learning Disabilities 

The University of Connecticut, U-64 
249 Glenbrook Road 
Storrs, CT 06269-2064 
(203) 486-4036 

The Center offers technical assistance on developing 
support services for students with learning 
disabilities for colleges and postsecondary programs 
throughout the country. Program staff provide 
training for administrators and postsecondary 
service providers through inservice presentations 
and degree programs on campus. In addition, 
Center staff are involved in on-going research and 
writing/dissemination on issues related to 
postsecondary students with learning disabilities. 
Each June, the Center sponsors the National 
Postsecondary Training Institute for professionals 
dealing with postsecondary learning disabilities. 
The Postsecondary LD Network News, which 
includes information on conferences, resources, and 
"best practices" for service providers, is published 
three times a year and is available through the 
Center on a subscription basis. 

Council for Learning Disabilities (CLD) 



P.O. Box 40303 
Overland Park, KS 66204 
(913) 492-8755 

The CLD is a national organization which serves 
professionals who work with individuals having 
learning disabilities. It has an interdisciplinary, 
field-based focus. The organization sponsors an 
annual international conference and several regional 
conferences. It publishes the Learning Disability 
Quarterly and the LD Forum, produces videotapes 
on LD issues, and sponsors grants and awards for 
research and teaching related to learning 
disabilities. 

Learning Disability Association (LDA) 

4156 Library Road 
Pittsburgh, PA 15234 
(412)341-1515 

LDA (formerly Association for Children and Adults 
with Learning Disabilities) is a national information 
and referral service. It provides free information on 
LD and puts an inquirer in contact with one of 700 
local chapters throughout the country. A 
subscription to Newsbriefs is $13.50. The annual 
membership fee is $25.00. 

Learning Disabilities Network 

25 Accord Park Drive 
Rockland, MA 02370 
(617) 982-8100 

The Network provides educational and referral 
services for learning-disabled individuals, their 
families, and professionals, primarily in the 
Northeast. Available on a nationwide basis are 
printed materials about learning disabilities. The 
Network also offers conferences, seminars, and 
workshops. The Exchange, a semiannual newsletter, 
is free to members and $20.00/year to nonmembers. 
The Network Scholarship Fund for Individuals with 
Learning Disabilities makes quality educational 
therapy more accessible. 

National Center for Learning Disabilities (NCLD) 

99 Park Avenue, 6th Floor 
New York, NY 10016 
(212)687-7211 

NCLD helps people affected with this "hidden 
handicap" to live self-sufficient, productive and 
fulfilling lives. Services include raising public 
awareness and understanding; legislative advocacy; 
information and referrals and special educational 
programs and products for parents and 
professionals in this country and abroad. THEIR 
WORLD is an annual magazine with features about 
children, youth, and adults; it is enhanced by 
excellent photography and articles about 
nationwide efforts. 



18 



National Network of Learning Disabled Adults 
(NNLDA) 

800 N. 82 Street 
Scottsdale, AZ 85257 
(602)941-5112 

NNLDA is an organization run by and for people 
who have learning disabilitis. A free newsletter and 
list of self-help groups is available. Please send a 
stamped envelope for mail responses. 

Orton Dyslexia Society 

724 York Road 
Towson, MD 21204 
(301)296-0232 
(800) 222-3123 

The Society is an international scientific and 
educational association concerned with 
developmental dyslexia, a specific learning 
disability. Parents as well as professionals are 
members in chapters in many states. Publications 
include books, packets, and reprints helpful in 
understanding dyslexia. Guidelines are available for 
starting a new chapter of their College Affiliate 
Program, composed of support groups on some 
campuses for people with dyslexia. 



distinguishes between colleges with fully developed 
programs and those offering some services. 
Available for $19.95, plus $4.75 UPS cost and 
handling, from Peterson's Guides, P.O. Box 2123, 
Princeton, NJ 08543-2123. (800) 388-3282. 

Unlocking Potential: College and Other Choices 
for Learning Disabled People (1987), by Barbara 
Scheiber and Jeanne Talpers, focuses on the 
selection of appropriate college, technical school, or 
other postsecondary programs; the admissions 
process; coursework accommodations; supportive 
services; the use of new technology; and tips on 
personal adjustment. It is available for $12.95 from 
bookstores; or it can be ordered from Woodbine 
House, 5615 Fishers Lane, Rockville, MD 20814 (800) 
843-7323. 

See also: 

AHSSPPE Learning Disability Interest Group 
Minerva Press pamphlets, Family Support Section 
Technology Section 
National Library Service for the Blind and 

Physically Handicapped, Library of Congress 
Recording for the Blind 
Voice Indexing for the Blind 



ADDITIONAL RESOURCES 

BOSC Directory: Facilities for Learning Disabled 
People (1990) lists schools and independent living 
programs, colleges and vocational training 
programs, and agencies serving people with 
learning disabilities. Articles at the beginning of the 
directory discuss such topics as how to decide on a 
placement, vocational assessment, and matching the 
student with a college. Articles also offer 
suggestions about what colleges expect of students, 
what students will receive from the college 
environment, and questions which students should 
ask to make well-informed decisions. $25.00; 
shipping, $2.50. Other titles are available. Write 
BOSC Publishers, Box 305, Congers, NY 10902. 
(914) 638-1236. 

HEATH Resource Center publications on this topic 
are: 

Resources for Adults with Learning Disabilities 
Students with Learning Disabilities in 

Postsecondary Education 
Young Adults with Learning Disabilities and 
Other Special Needs 

Peterson's Guide to Colleges with Programs for 
Learning Disabled Students (Second Edition, 1988), 
edited by Charles T. Mangrum II and Stephen S. 
Strichart, is a comprehensive guide to more than 900 
two-year and four-year colleges and universities 
offering special services for students with dyslexia 
and other learning disabilities. The Guide 



MOBILITY IMPAIRMENT AND INJURY- 
RELATED DISABILITIES 

American Amputee Foundation 

2506 Riverfront Drive #3 
Little Rock, AR 72202 
(501) 666-2523 

The Amputee Foundation services amputees and 
their families, offers peer support, direct aid, 
hospital visitation, self-help, and general 
publications. 

Family Survival Project (FSP) 

425 Bush Street, Suite 500 
San Francisco, CA 94108 
(415) 434-3388 Voice 
(800) 445-8106 Voice in CA only 

FSP is part of a statewide network of caregiver 
resource centers designed to support families caring 
for members with any type of brain impairment. 
The focus includes those impaired by traumatic 
brain injury, stroke, Alzheimer's disease, or other 
brain disorders/diseases. There are 11 caregiver 
resource centers throughout California, all of which 
provide respite, legal, financial and family 
counseling, training & education, and support 
groups. A national newsletter called Update, several 
publications, and fact sheets are available. 



19 



Gazette International Networking Institute (GINI) 

4502 Maryland Avenue 
St. Louis, MO 63108 
(314)361-0475 

GINI seeks to reach, inform and dignify people with 
disabilities throughout the world through its 
network of people and publications. Rehabilitation 
Gazette is an international journal written by 
individuals with a disability, is published 
biannually and contains articles and resources 
pertinent to disability. 

Polio Network News, published quarterly, contains 
updated information on the late effects of polio. 
GINI also publishes an annual Post-Polio Directory 
which lists clinics, health professionals, and support 
groups. I. V.U.N. News, for ventilator users, is 
published biannually and contains the latest 
information on home mechanical ventilation. There 
is a modest fee for the publications and questions 
are welcome. 



include free copies and discounts offered by NSCIA, 
a discount pharmaceutical program, and special 
rates for NSCIA's convention and education 
seminars. Organization memberships and benefits 
are also available. 

Paralyzed Veterans of America (PVA) 

801 18th Street, NW 
Washington, DC 20006 
(202) 872-1300 

PVA is a nationwide veterans' service organization 
dedicated to serving the needs of America's 
paralyzed veterans and to representing the concerns 
of all veterans and members of the disability 
community. The national organization and its 
chapters throughout the United Stated and Puerto 
Rico are actively involved in spinal cord research, 
health, wheelchair sports /recreation programs, and 
general accessibility to society for physically- 
challenged individuals. 



National Head Injury Foundation (NHIF) 

1140 Connecticut Avenue, NW, Suite 812 
Washington, DC 20036 
(202) 296-6443 
(800) 444-6443 

NHIF is an advocacy group composed of families, 
friends, medical, and social service professionals 
concerned with the physical and emotional well- 
being of people who have been head injured. The 
foundation serves as a clearinghouse for 
information and resources for people with head 
injuries and their families. It also publishes a 
quarterly newsletter and sponsors 150 chapters in 
states across the country. The 1989 edition of the 
NHIF National Directory of Head Injury 
Rehabilitation Services, intended for rehabilitation 
counselors and other professionals, is available for 
$32.95. The Foundation emphasizes, however, that 
its primary purpose is to give resources to family 
members, immediately, by phone and without 
charge. 

National Spinal Cord Injury Association (NSCIA) 

600 W. Cummings Park, Suite 2000 
Woburn, MA 01801 
(617)935-2722 
(800) 962-9629 

This membership organization provides information 
about spinal cord injury and related subjects to all 
inquirers including injured individuals, families, -» 
health care professionals, and other agencies. 
Local support is available through a network of 35 
chapters, which have been established in most states 
across the country. Other programs include a 
support system for children and their families, 
entitled "In Town with Kids", referral services, and 
membership benefits. These benefits for individuals 



Spinal Cord Injury Hotline 
American Paralysis Association (APA) 

c/o Montebello Rehabilitation Hospital 
2201 Argonne Drive 
Baltimore, MD 21218 
(800) 526-3456 

The Spinal Cord Injury Hotline is a toll-free 
information and referral service of the American 
Paralysis Association. It is available to individuals 
who have sustained a spinal cord injury and to their 
families. It facilitates the search for support and 
resources by referring callers to individuals having 
personal experience with spinal cord injury (peer 
contacts), or to professionals or organizations with 
expertise in these areas. The Hotline works with 
individuals to solve a wide range of problems and 
to direct them to the most current and helpful 
resources. 



ADDITIONAL RESOURCES 

HEATH Resource Center publications on this topic 
are: 

Head Injury Survivor on Campus. 

Make the Most of Your Opportunities. 

Spinal Network (1987), edited by Sam Madoxx, 
contains 400 pages of resources for wheelchair users 
and is interestingly written and illustrated. It is a 
spiral bound book that is easily used by consumers 
and professionals alike. ($24.95, plus $3.00 shipping 
costs). Spinal Network Extra ($3.00 each) is a 
periodical supplement to Spinal Network. Both 
may be ordered from Spinal Associated, LTD., P.O. 
Box 4162, Boulder, CO 80306. (303) 449-5412. 



20 



See also: 

AHSSPPE Special Interest Group, Access to 

Program Section 
Architectural Access Section 
Family Support Section 
ICD-International Center for the Disabled 



secondary, and college use. Founded in 1909, 
NMHA develops and urges policy position on key 
issues, and trains volunteers in client support 
services and advocacy. The quarterly newsletter 
FOCUS is $15.00/year. Also available is an 
extensive list of publications. 



PSYCHIATRIC DISABILITIES 

Center for Psychiatric Rehabilitation 

Psychiatric Rehabilitation Services Center 

Boston University 

730 Commonwealth Avenue 

Boston, MA 02215 

(617) 353-3550 

The Center for Psychiatric Rehabilitation has been 
jointly funded since 1979 as a Research and Training 
Center (RTC) by the National Institute of Mental 
Health (NIMH). The mission of the Center is to 
increase knowledge, to train treatment personnel, to 
develop effective rehabilitation programs, and to 
assist in organizing both personnel and programs 
into efficient and coordinated service delivery 
systems. The Center is organized into three 
divisions: Research and Training, Technology, and 
Services. Resource materials related to pyschiatric 
rehabilitation are available upon request. 

National Alliance for the Mentally 111 (NAMI) 

2101 Wilson Boulevard, Suite 302 
Arlington, VA 22201 
(703) 524-7600 
(800) 950-6264 

NAMI is a self-help organization of mentally ill 
persons, their families, and their friends. Composed 
of over 1000 affiliate groups, nationwide, its goals 
are mutual support, education, and advocacy for the 
victims of severe mental illness. The philosophy is 
that brain disease causes schizophrenia, manic 
depressions, and other disabling conditions. 
Support groups provide coping strategies to families 
and to the persons with mental illness. Call to get 
the closest affiliated group. NAMI offers a 
newsletter, the NAMI Advocate, and other 
publications. 

National Mental Health Association (NMHA) 

1021 Prince Street 
Alexandria, VA 22314-7722 
(703) 684-7722 

NMHA has an active information center which can 
refer callers to one of 600 affiliate centers across the 
country. It also has fact sheets about various types 
of mental illness and mental health, such as 
schizophrenia, depression, adolescent suicide 
prevention, stress and tension. Its Office of 
Prevention has curricular materials for elementary, 



National Mental Health Consumer Self-Help 
Clearinghouse 

311 S. Juniper Street, Suite 902 
Philadelphia, PA 19107 
(215) 735-2481 

This clearinghouse draws upon the experience of 
many individuals and groups who have extensive 
experience organizing self-help groups. Topics 
include fund-raising, press and community 
relations, advocacy, recruitment, and network- 
building. Each state has a designated office to do 
protection and advocacy for mental illness. Call for 
referral. 

Thresholds Psychiatric Rehabilitation Center 

2700 Lakeview Avenue 
Chicago, IL 60614 
(312) 281-3800 

Thresholds is a psychosocial rehabilitation agency 
serving persons with severe and persistent mental 
illness. It promotes improved service and 
functioning in six areas: vocation, independent 
living, education, social skills, avoidance of 
rehospitalization, and physical health. Grants from 
the U.S. Office of Education support the Supported 
Competitive Employment Newsletter; a manual for 
parents called Strengthening Skills for Success: A 
Manual to Help Parents Support their 
Psychiatrically Disabled Youth's Community 
Employment; and the Community Exploration 
Program, a curriculum to encourage withdrawn 
people to go out, to be aware of employment 
opportunities, and to use appropriate skills in those 
settings. Specifically related to postsecondary 
education are: Addressing Problems with 
Postsecondary Vocational Education and Guide to 
Choosing a Postsecondary School for 
Psychiatrically Disabled Youth. 

See also: 

Access to Education and Program Section, 

AHSSPPE Task Force 
Mental Health Law Project 

Minerva Press pamphlets, Family Support Section 
National Association of Protection & Advocacy 

Systems 



21 



VISION IMPAIRMENT 

American Council of the Blind (ACB) 

1155 15th Street, NW, Suite 720 
Washington, DC 20005 
(202) 467-5081 
(800) 424-8666 

ACB is an information referral and advocacy 
agency. There are 52 state/regional affiliates and 21 
national special interest and professional affiliates. 
Their goal is to improve the well-being of people 
who are blind or visually impaired through 
legislative advocacy; to improve educational and 
rehabilitation facilities, encourage and assist all 
blind persons to develop their abilities; and conduct 
a public education program to promote greater 
understanding of blind people. 

American Foundation for the Blind (AFB) 

15 West 16th Street 
New York, NY 10011 
(212) 620-2000 
(800) 232-5463 

AFB was established to serve as the national partner 
of local services for blind and visually impaired 
persons. Services provided include information and 
consultation in areas of education, rehabilitation, 
employment and special products. The Journal of 
Visual Impairment and Blindness is available on a 
subscription basis. AFB News, a quarterly 
publication, is available free. Request the latest 
Catalog of Publications (free) and/or their 
Products for People with Visual Problems. Six 
regional centers in the country offer consultation 
and referral to organizations (not private 
physicians). The Directory of Services for Blind 
and Visually-Impaired Persons in the U.S. ($34.95) 
is also available on cassette. 

American Printing House for the Blind, Inc. (APH) 

1839 Frankfort Avenue 
P.O. Box 6085 
Louisville, KY 40206-0085 
(502) 895-2405 

APH, established in 1858, manufactures materials 
for the use of blind people of all ages. Reading 
materials include books in braille, large type, and 
recorded form. Educational aids, tools, and supplies 
include braille writing and embossing equipment; 
computer software and hardware; educational 
games; low vision aids; braille and large type paper, 
binders, and notebooks. It will ship products to any 
destination in the world, and the catalogues are 
available in print and on cassette. 



Association of Radio Reading Service, Inc. 

1010 Vermont Avenue, NW, Suite 1100 
Washington, DC 20005 
(202) 347-0955 
(800) 255-2777 

More than 100 closed-circuit radio stations 
throughout the USA broadcast daily news, features, 
magazine articles, and other programs designed for 
persons who are print-handicapped, regardless of 
the disability. These stations provide day and night 
programming, sometimes 24 hours per day. Many 
issue printed schedules of their programs. The 
entire service, including a specially-built radio 
receiver, is free. To locate the nearest radio reading 
service, call or write. 

Council of Citizens with Low Vision International 
(CCLVI) 

MOON. Drake Road, #218 
Kalamazoo, MI 49007 
(616) 381-9566 

CCLVI is an advocacy membership organization 
composed of individuals with low vision, 
professionals working with low vision, 
professionals working in the field, and family 
members of those with partial vision. CCLVI serves 
as a clearinghouse on low vision and promotes 
education, research, legislation and the elimination 
of barriers to the full use of residual vision. 
Publications include a pamphlet, The Council of 
Citizens with Low Vision: A Vital Alternative for 
the Partially Sighted and a quarterly newsletter. A 
$1000 scholarship is awarded each year to a person 
(regardless of race, color, ethnic origin, sex or 
handicap) who is preparing to work in some 
capacity as a professional in the field of low vision. 

National Alliance of Blind Students (NABS) 

1155 15th Street, NW, Suite 720 
Washington, DC 20005 
(202) 467-5081 
(800) 424-8666 

NABS provides a national voice for students with 
vision impairments. It has an annual convention; a 
national newsletter, The Student Advocate 
($3.00/yearr); and a program to assist with 
employment. The staff does scholarship searches 
and is constantly updating its list of opportunities. 
Membership is $5.00/year. NABS is an affiliate of 
the American Council of the Blind. 

National Association for the Visually 
Handicapped (NAVH) 

22 West 21st Street 
New York, NY 10010 
(212) 889-3141 

NAVH offers services for people with partial vision. 
Information booklets and publications (much in 
large print) are available for consumers, their 



22 



families, professionals and paraprofessionals, and 
for the business community. A free Loan Library of 
Large Print is available through the mail. 
Newsletters are issued once or twice a year: 
SEEING CLEARLY for adults and IN FOCUS for 
children (both in large print). 

National Federation of the Blind (NFB) 

1800 Johnson Street 
Baltimore, MD 21230 
(301)659-9314 

NFB is a consumer group which can answer 
questions about blindness, refer people to 
appropriate resources or adapted equipment, and 
send a publications list. Postsecondary Education 
and Career Development-A Resource Guide for 
the Blind, Visually Impaired, and Physically 
Handicapped can be ordered from the above 
address by prepaying $5.95. NFB has a number of 
scholarships available for blind students in 
postsecondary education. The Braille Monitor is a 
monthly publication available without cost to 
members. It sponsors JOB, a job listing and referral 
service. 



Recording for the Blind, Inc. (RFB) 

20 Roszel Road 

Princeton, NJ 08540 

(609) 452-0606 

(800) 221-4792 (book orders only) 

RFB is a national, non-profit service organization 
providing recorded textbooks, library services and 
other educational resources to individuals who 
cannot read standard print because of visual, 
physical, or perceptual disability. RFB's 75,000- 
volume Master Tape Library, the largest resource of 
its kind in the world, is being steadily augmented 
by the work of 4,000 volunteers in 32 recording 
studios across the country. In addition to recording 
and lending books, RFB compiles bibliographies of 
books available on tape. Registering as an RFB 
borrower requires documentation of disability and a 
one-time only registration fee of $25.00. Application 
forms and descriptive literature are available upon 
request. Subscriptions to Recording for the Blind 
News, RFB's quarterly newsletter, (in print or on 
cassette) are free of charge. A print catalogue (plus 
supplements) of books in RFB's library is available 
for $20.00. 



National Federation of the Blind, 
Student Division 

31548 Large Vista Road 
Vallev Center, CA 92082 
(619) 749-0103 

The Student Division of the NFB is an organization 
dedicated to considering and acting upon issues of 
concern to blind students. With affiliates in over 
twenty states, this division provides an nationwide 
network for blind students. The Student Division is 
a self-support network for blind students and a 
mechanism for political action. Serving as the 
collective voice of organized blind students in 
America, the Student Division meets on a 
continuing basis with such major service providers 
as Recording for the Blind and the Educational 
Testing Service. Its purpose is to change "what it 
means to be a blind student in America." 

National Library Service for the Blind and 
Physically Handicapped 

Library of Congress 
1291 Taylor Street, NW 
Washington, DC 20542 
(202) 707-5100 

The Library Service provides, free of charge, 
recorded and braille reading materials to persons 
with documented visual or physical impairments 
which prevent the reading of standard print 
material. A Union Catalog lists 72,000 books 
currently available in braille or on recordings. 
Contact the Reference Section with any questions 
about types of materials needed. Descriptive 
literature is available. 



Resources for Rehabilitation 

33 Bradford Street, Suite 19A 
Lexington, MA 02173 
(617) 862-6455 

Resources for Rehabilitation is a non-profit 
organization that produces the "Living with Low 
Vision" series of publications. Professional 
publications include Rehabilitation Resource 
Manual: VISION ($39.95 plus $4.50 
shipping/handling) and Providing Services for 
People with Vision Loss: A Multidisciplinary 
Perspective ($19.95 plus $3.00 shipping/handling). 
Living with Low Vision: A Resource Guide for 
People with Sight Loss ($35.00 plus 
shipping/handling) is a large print directory that 
enables people with visual impairments to find the 
assistance they need to remain independent. A 
special series of large print publications designed 
for distribution by professionals to people with 
vision loss includes Living with Low Vision, Living 
with Diabetic Retinopathy, Children and 
Adolescents with Vision Loss, High Tech Aids for 
People with Vision Loss, and Aids for Everyday 
Living with Vision Loss. Resources for 
Rehabilitation also conducts training programs on 
vision loss and will custom design a program to 
meet an organization's special needs. 

Voice Indexing for the Blind, Inc. (VIB) 

7420 Westlake Terrace #203 
Bethesda, MD 20817 
(301) 469-9470 

VIB instructs in voice indexing, which enables users 
to highlight and scan taped material. It also 
produces voice-indexed recordings on contract, and 



23 



lectures on how print-handicapped persons can 
access reference materials. Procedure for Sequential 
Voice-Indexing on a 2-Track or 4-Track Cassette 
Recorder and Voice-Indexed Cassettes (a 

catalogue) are available in large print and on voice- 
indexed cassettes. Note that voice indexing is a 
helpful skill for students with writing difficulty and 
learning disabilities as well as vision impairments. 



ADDITIONAL RESOURCES 

See also: 

AHSSPPE Blind and Visually Impaired Special 

Interest Group 
American Association of the Deaf-Blind 
Job Opportunities for the Blind 



FUNDING 



Federal Student Aid Information Center 

Office of Student Financial Assistance 

Postsecondary Education 

U.S. Department of Education 

Washington, DC 20202 

(800) 433-3243 

(301) 369-0518 (TDD) 

The Information Center staffs a toll-free number 
available in all 50 States and Puerto Rico. It can 
answer questions about Federal student aid from 
students, parents, and Members of Congress, as well 
as financial aid administrators. The Center has 
available several publications, including the 
Student Guide: Five Federal Financial Aid 
Programs, the Application for Federal Student Aid 
(in print and on cassette), and Correction AFSA (in 
English and Spanish). 

Foundation Center 

79 Fifth Avenue 
New York, NY 10003 
(212) 620-4230 

The Center operates four libraries (in New York, 
Washington, DC, Cleveland, and San Francisco). In 
these, and various other libraries across the country, 
are found four reference books which index 
foundations and grants made to organizations 
serving persons with disabilities. In a few cases, 
grants to individuals are listed. To find the address 
of the nearest of the 150 collections, call the New 
York number above. 

ADDITIONAL RESOURCES 

Financial Aid for Students With Disabilities. 

HEATH Resource Center. (Discusses the process of 
applying for aid and a very few sources of aid. 
HEATH does not manage funds for scholarship 
asssistance). 



Grants for Graduate Students — 1988, edited by 
Andrea Leskes, could be useful for currently 
enrolled graduate students, undergraduates 
planning to enter graduate school, graduate school 
deans, career counselors, and faculty seeking 
support for their graduate students. It contains very 
few sources of funding specifically for students with 
disabilities. However, with 650 entries, it is a major 
source for those seeking graduate school funding. 
Available in libraries, or for $29.95 from Peterson's 
Guides, 166 Bunn Drive, P.O. Box 2133, Princeton, 
NJ 08450-0008. 

Federal Funding to Two-Year Colleges for 1990 is 

the annual comprehensive publication produced by 
the National Council for Resource Development. 
Despite its title, this book is useful to four-year 
colleges, as well as two-year colleges, since it 
describes over 20 Federal programs which actually 
fund campus programs. Contact information is 
included. Available for $30.00 to the public, plus 
$1.50 for postage and handling, from the National 
Council for Resource Development (NCRD), One 
Dupont Circle, Suite 410, Washington, DC 20036 
(202) 728-0200. 

See also: 

American Council of the Blind 

Carl D. Perkins Vocational Education Act 

Clearinghouse on Disability Information (OSERS) 

(re. Federal funding) 
Council for Learning Disabilities 
Council of Citizens With Low Vision 
Foundation for Science and the Handicapped 
Learning Disabilities Network 
National Federation of the Blind 
World Institute on Disability 



24 



LEGAL ASSISTANCE 



ORGANIZATIONS 

Disability Rights Education and Defense Fund 
(DREDF) 

2212 6th Street 
Berkeley, CA 94702 
(415) 644-2555 

Governmental Affairs: 
1616 P Street, NW, Suite 100 
Washington, DC 20036 
(202) 328-5185 

DREDF is a national disability rights law and policy 
center dedicated to equal opportunities for persons 
with disabilities. It offers education and training 
programs on disability civil rights issues, legal 
support and advocacy, and analysis of policy 
questions. It has publications for distribution; and 
callers can be referred to local sources of help. 

Fund for Equal Access to Society 

7945 MacArthur Boulevard, #204 
Cabin John, MD 20818 
(301)320-6185 

The Fund is a non-profit corporation formed in 1980 
to advocate for full and equal access for individuals 
precluded from effective participation in various 
aspects of society, including college campuses or 
training sites. A caller could also be referred to a 
more appropriate source of legal assistance. 

Mental Health Law Project (MHLP) 

2021 L Street, NW 
Washington, DC 20036 
(202) 467-5730 

MHLP is a non-profit advocacy law group which 
can provide technical assistance to attorneys and 
service providers. Their main function is not direct 
service or referral to specific attorneys. They select 
cases which would have national impact on 
advocacy for people with disabilities, especially in 
the areas of developmental and psychiatric 
disabilities. 

National Center for Law and the Deaf (NCLD) 

800 Florida Avenue, NE 
Washington, DC 20002 
(202) 651-5373 (Voice/TDD) 

NCLD provides legal education on issues affecting 
people who are deaf or hard of hearing through 
conferences, workshops, and classes. It also presents 
educational programs to the hearing community on 
compliance with state and federal legislation 
requirements. The Center is an advocate to many 



law schools on behalf of deaf students; it works with 
prospective deaf law students on career possibilities; 
and it advises students about the Law School 
Aptitude Test and other realities of law school life. 

Public Interest Law Center of Philadelphia 
(PILCOP) 

125 South 9th Street, Suite 700 
Philadelphia, PA 19107 
(215) 627-7100 

PILCOP is a non-profit, public interest law firm 
with a Disabilities Project specializing in class action 
suits brought by individuals and organizations. The 
primary interests of the Disabilities Project are in 
promoting home and community-based support 
services for people with developmental disabilities 
and in promoting state-of-the-art education and 
related services for people with handicaps in 
integrated settings in the public schools. Higher 
education and employment rights of people with 
disabilities is another focus. (PILCOP does not deal 
with mental health issues.) 

ADDITIONAL RESOURCES 

Legal Rights of Hearing Impaired People, 

Gallaudet University Bookstore, P.O. Box 103-B 
Kendall Green, Washington, DC 20002 ($13.95) 

Mental and Physical Disability Law Reporter is the 

primary publication of the Commission on the 
Mentally Disabled of the American Bar Association. 
Also available is a catalogue listing numerous other 
printed materials related to various disability issues 
and the law, especially useful for professionals. 
ABA, 1800 M Street, NW, Suite 200, Washington, DC 
20077-9428 (202) 331-2240. 



FEDERAL LAWS AND REGULATIONS 

Increasing numbers of students with disabilities 
are attending American colleges, universities, 
vocational-technical programs, proprietary schools, 
independent living centers, adult education 
programs, and other places where people continue 
to learn after high school. Over the past decade and 
a half, there has been a dramatic growth of 
opportunities and a crumbling of barriers on 
campuses and in workplaces. 

Students have been assisted in their education 
and adult training by a range of accommodations 
that make full participation possible for many. 
Examples of these accommodations are: relocation 
of classes and additional time for tests; support 
services including interpreters, readers, notetakers, 



25 



taped tests, and job coaches; and technological 
equipment such as talking calculators, Braille 
typewriters, and voice or light beam-operated 
computer terminals. With such assistance, people 
with disabilities have been able to make great 
strides toward managing their lives; and they have 
been increasingly successful in a variety of 
postsecondary programs alongside their non- 
handicapped peers. This kind of success has been 
achieved gradually, following passage of laws 
reflecting society's growing awareness of and 
appreciation for citizens who have disabilities. 

Rehabilitation Act and Regulations 

Section 504 of the the Rehabilitation Act of 1973 
(P.L. 93-112), together with the implementing 
regulations of 1977 which were reissued by the U.S. 
Department of Education in 1980, prohibits 
discrimination on the basis of physical and mental 
handicap in elementary and secondary and 
postsecondary education, including postsecondary 
vocational education, programs and activities that 
receive Federal funds. Section 504 provides that "no 
qualified handicapped person shall, on the basis of 
handicap, be excluded from participation in, be 
denied the benefits of, or otherwise be subjected to 
discrimination under any program or activity which 
receives or benefits from Federal financial 
assistance." According to the regulations, a 
"qualified" individual with handicaps, with respect 
to postsecondary and vocational education, is 
defined as one "who meets the academic and 
technical standards requisite to admission or 
participation in the recipient's education program or 
activity." 

Section 504 enumerates specific programs and 
activities which must be operated in a 
nondiscriminatory manner, such as recruitment, 
testing, admissions, and treatment after admission. 
For example, institutions must assure that 
admissions tests are selected and administered to 
applicants with impaired sensory, manual, or 
speaking skills in such a manner as is necessary to 
avoid unfair distortion of test results. Colleges, 
universities, and other postsecondary institutions 
are required to make academic adjustments so that 
qualified students with disabilities can fulfill 
academic requirements. An institution also has the 
responsibility to ensure that a qualified 
handicapped student is provided with auxiliary aids 
so that the student can effectively participate in the 
institution's program. Institutions can usually meet 
the latter obligation by assisting students in 
obtaining auxiliary aids through other sources, such 
as state vocational rehabilitation agencies and 
private charitable organizations. 

Under the Section 504 regulation, no qualified 
individual with disabilities shall be subjected to 
discrimination under any program or activity 
because a recipient's program and facilities are 
inaccessible to or unusable by them. Architectural 



modifications need not be made to facilities 
constructed prior to the June 3, 1977, effective date 
of the regulation, where alternative methods are 
effective in making recipients' programs and 
activities, when viewed in their entirety, readily 
accessible to individuals with handicaps. That is to 
say, postsecondary institutions are not required to 
make all older facilities accessible, but may instead 
use such means as the redesign of equipment, 
assignment of aides, or relocation of classes to 
achieve program accessibility. Facilities or parts of 
the facilities constructed, or alterations made after 
June 3, 1977, must be readily accessible to and 
usable by individuals with disabilities. Effective 
January 18, 1991, all new construction and 
alterations must be designed in conformance with 
the Uniform Federal Accessibility Standards or 
equivalent standards. 



Individuals with Disabilities Education 
Act (IDEA), formerly Education for All 
Handicapped Children Act 

In 1975, the Education of All Handicapped 
Children Act (P.L. 94-142) substantially amended 
the 1969 Education of the Handicapped Act (91-230, 
Title VI) and established the right of all children to a 
"free appropriate public education." It requires 
that education be provided with related services in 
the least restrictive environment appropriate to each 
individual child as specified in that child's formal 
Individualized Education Plan (IEP), which must be 
written with the involvement and consent of parents 
and professionals. The legislation also incorporated 
due process guidelines to safeguard the rights of 
children with disabilities and their parents. The 
Education of the Handicapped Act also established 
a number of discretionary programs for the purpose 
of improving the education of individuals with 
disabilities at all levels of schooling. 

The Education of the Handicapped Act 
Amendments of 1983 (P.L.98-199) mandated the 
establishment of a national clearinghouse on 
postsecondary education for individuals with 
handicaps. Since 1984, HEATH Resource Center has 
operated this clearinghouse as a program of the 
American Council on Education (ACE). 

In October, 1990, Congress passed the Education 
of the Handicapped Act Amendments of 1990 (P.L. 
101-476), which changes the name of the law to 
Individuals with Disabilities Education Act 
(IDEA). Many of the discretionary programs 
authorized under the law have been expanded. 
Some new discretionary programs were created, 
including: special programs on transition, improved 
services for children and youth with serious 
emotional disturbance, and a research and 
information dissemination program on attention 
deficit disorder. In addition, the law now includes 
transition services and assistive technology services 



2b 



as new definitions of special education services 
which must be included in a child's or youth's IEP. 
Also, rehabilitation counseling and social work 
services will be included as related services under 
the law. Finally, the services and rights under this 
law are expanded to more fully include children 
with autism and traumatic brain injury. 

Carl D. Perkins Vocational and Applied 
Technology Education Act 

The Carl D. Perkins Vocational and Applied 
Technology Education Act (P.L. 98-524, 1984; 
amended by P.L.101-392, 1991) concentrates 
resources on improving educational programs 
leading to the academic and occupational skill 
competencies needed to work in a technologically 
advanced society. The new law expands the term 
"special populations to include individuals with 
disabilities, individuals who are economically and 
educationally disadvantaged (including migrant 
and foster children), individuals with limited 
English proficiency, individuals who participate in 
programs to eliminate sex bias, and those in 
correctional institutions. P.L. 101-392 is closely 
interwoven with the IDEA (above) to guarantee full 
vocational education opportunities for youth with 
disabilities. 



Civil Rights Restoration Act 

The Civil Rights Restoration Act of 1987 (P.L.100- 
259) provides agencies with broader authority to 
investigate allegations of discrimination than they 
had under the Supreme Court's decision in 1984 in 
Grove City College v. Bell. Under Grove City, an 
agency had jurisdiction to investigate discrimination 
only when the specific program or activity within 
the institution in which the discrimination allegedly 
existed was receiving Federal financial assistance. 
The Civil Rights Restoration Act expands the 
definition of a program or activity so that agencies 
may investigate allegations of discrimination 
anywhere in an educational institution, so long as 
that institution receives Federal financial assistance. 

NOTE: The Office for Civil Rights' regional 
offices listed on the next page are available to 
respond to requests for technical assistance about 
Section 504, but not concerning the other two laws. 



27 



REGIONAL TECHNICAL ASSISTANCE OFFICES 



The Office for Civil Rights, U.S. Department of 
Education, maintains ten regional offices which 
would be able to answer questions on matters 
related to Section 504 of the Rehabilitation Act of 
1973. For further information, contact the 
appropriate regional offices listed below. 

Region I: (Connecticut, Maine, Massachusetts, 
New Hampshire, Rhode Island, Vermont) 

U.S. Department of Education 

Office for Civil Rights 

J.W. McCormack Post Office and Courthouse 

Building, Room 222, 01-0061 

Boston, MA 02109-4557 

(617) 223-9662 

(617) 223-9695 (TDD) 

Region II: (New Jersey, New York, Puerto Rico, 
Virgin Islands) 

U.S. Department of Education 

Office for Civil Rights 

26 Federal Plaza, 33rd Floor, Room 33-130, 02-1010 

New York, NY 10278-0082 

(212) 264-4663 

(212) 264-9464 (TDD) 



Region VI: (Arkansas, Louisiana, New Mexico, 
Oklahoma, Texas) 

U.S. Department of Education 

Office for Civil Rights 

1200 Main Tower Bldg., Suite 2260, 06-5010 

Dallas, TX 75202-9998 

(214) 767-3959 

(214) 767-3639 (TDD) 

Region VII: (Iowa, Kansas, Missouri, Nebraska) 

U.S. Department of Education 

Office for Civil Rights 

10220 N. Executive Hills Blvd., 8th Floor, 07-6010 

Kansas City, MO 64153-1367 

(816) 374-6461 (TDD) 

Region VIII: (Colorado, Montana, North Dakota, 
South Dakota, Utah, Wyoming) 

U.S. Department of Education 

Office for Civil Rights 

Federal Office Building 

1961 Stout Street, Room 342, 08-7010 

Denver, CO 80294-3608 

(303) 844-5695 

(303) 844-3417 (TDD) 



Region III: (Delaware, District of Columbia, 
Maryland, Pennsylvania, Virginia, West Virginia) 

U.S. Department of Education 

Office for Civil Rights 

3535 Market Street, Room 6300, 03-2010 

Philadelphia, PA 19104-3326 

(215) 596-6772 

(215) 596-6794 (TDD) 

Region IV: (Alabama, Florida, Georgia, Kentucky, 
Mississippi, North Carolina, South Carolina, 
Tennessee) 

U.S. Department of Education 

Office for Civil Rights 

101 Marietta Tower, 27th Floor, Suite 2702 

P.O. Box 1705, 04-3010 

Atlanta, GA 30301-1705 

(404) 331-2954 

(404) 331-7816 (TDD) 



Region IX: (Arizona, California, Hawaii, Nevada, 
Guam, Trust Territory of Pacific Islands, American 
Samoa) 

U.S. Department of Education 

Office for Civil Rights 

Old Federal Building 

50 United Nations Plaza, Room 239, 09-8010 

San Francisco, CA 94102 

(415) 556-7000 

(415) 556-6770 (TDD) 

Region X: (Alaska, Idaho, Oregon, Washington) 

U.S. Department of Education 

Office for Civil Rights 

915 Second Avenue, Room 3310, 10-9010 

Seattle, WA 98174-1099 

(206)442-6811 

(206) 442-4542 (TDD) 



Region V: (Illinois, Indiana, Michigan, Minnesota, 
Ohio, Wisconsin) 

U.S. Department of Education 

Office for Civil Rights 

401 South State Street, Room 700C, 05-4010 

Chicago, IL 60606-1202 

(312) 886-3456 

(312) 353-2541 (TDD) 



28 



TECHNOLOGY 



ABLEDATA 

Newington Children's Hospital 
Adaptive Equipment Center 
181 East Cedar Street 
Newington, CT 06111 
(203) 667-5405 
(800) 344-5405 

ABLEDATA is a computerized listing of over 17,000 
commercially available products for rehabilitation 
and independent living. Annotations about each 
product give detailed descriptions. Computer 
owners may otain an individual copy of 
ABLEDATA though the Trace Center (below). 
Professionals or others who subscribe to 
Bibliographic Retrieval Services (BRS) may access 
ABLEDATA directly. For information about BRS, 
(800) 289-4277. 

Apple Computer, Inc. 

National Special Education Alliance 

Worldwide Disability Solutions Group 

20525 Mariani Avenue, 36SE 
Cupertino, CA 95014 
(408) 974-7910 

These are two of Apple's projects providing 
information and technical assistance about Apple 
computer technologies appropriate to meet the 
Special Education and Rehabilitation needs of 
people with a wide range of disabilities. 

Center for Special Education Technology 

The Council for Exceptional Children 
1920 Association Drive 
Reston,VA 22091 
(703) 620-3660 
(800) 873-8255 

The Center is a national resource for information 
about the use of technology in the education of 
students with disabilities. Information services 
emphasize trends and practices in technology use as 
well as resources available to technology users. 

Center for Applied Special Technology (CAST) 

39 Cross Street 
Peabody, MA 01960 
(508) 531-8555 (Voice) 

CAST was founded in 1984 to expand opportunities 
for individuals with special needs through 
innovative use of computers and related technology. 
It works with children and adults whose disabilities 
interfere with the full expression of their capacities 
for education, employment, or development. 
Assessment and training services are offered for 
individuals with a wide range of special needs. 



Instruction and training in CAST's methods are 
provided to teachers and other professionals at 
workshops and presentations nationwide. CAST 
develops assistive technology and serves as a 
consultant to a variety of hardware and software 
manufacturers. CAST also offers a Summer 
Computer Camp Program at its facilities in 
Peabody, Massachusetts. A new service of CAST, 
the Mariner Systems, adapts the Macintosh (TM) 
computer systems to meet individual needs. Each 
computer system is designed for an individual by a 
team of professionals. The Mariner Systems service 
is available nationally or at CAST. 

Closing the Gap (CTG) 

P.O. Box 68 

Henderson, MN 56044 
(612) 248-3294 

CTG publishes a bimonthly newspaper on 
microcomputer applications for disabled 
individuals with an emphasis on special education 
and rehabilitation uses ($26.00/year). It provides 
presentations and hands-on training to special 
education and rehabilitation professionals 
throughout North America and at its training center 
in Minnesota; and it hosts an annual national 
conference on Computer Technology for the 
Handicapped each October. 

Computer Able Network 

P.O. Box 1706 
Portland, OR 97207 
(503) 645-0009 

The Network provides evaluations, training, 
adaptive computer systems, and assistance in 
Section 508 compliance. They determine viable, cost- 
effective solutions for persons of any ability through 
adaptive technology, and training. The Network 
offers a unique video tape training program in 
Adaptive Computer Technology. It is a for-profit 
corporation. 

IBM National Support Center for Persons with 
Disabilities 

4111 Northside Parkway 

Atlanta, GA 30327 

(800)426-2133 

(800) 284-9482 (TDD) 

The Center responds to requests for information on 
how computers can help people with a wide range 
of disabilities to use personal computers. While the 
Center is unable to diagnose or prescribe an 
assistive device of software, free information is 
provided on what is available and where one can go 
for more details. 



29 



National Special Education Alliance 

Apple Computer, Inc. 

20525 Mariani Avenue, M/S 435 

Cupertino, C A 95014 

(408) 974-7910 

The Alliance is a coalition of community resource 
centers, professional organizations, and technology 
vendors working together to increase the ways 
microcomputers can assist individuals with 
disabilities. Electronic linkage among centers and a 
national database allows information sharing about 
special education and rehabilitation. Training and 
technical assistance are available. 

RESNA 

1101 Connecticut Avenue, NW, Suite 700 

Washington, DC 20036 

(202)857-1199 

RESNA serves as an information center to address 
research, development, dissemination, integration, 
and utilization of knowledge in rehabilitation and 
assistive technology. Write or call for information on 
membership, publications, national and regional 
conferences, and journal and newsletter 
subscriptions. 



Trace Research and Development Center For 
Communication, Control and Computer Access 
For Handicapped Individuals 

Waisman Center 
1500 Highland Avenue 
Madison, WI 53705 
(608) 262-6966 (Voice) 
(608) 263-5408 (TDD) 

The Trace Center has a wealth of information on 
communication and other needs of severely 
disabled individuals which may be met by current 
microcomputer technology. Postsecondary persons 
can be trained in alternate access methods, which 
can be used to control devices in the workplace as 
well as in the home. Trace also maintains a reprint 
service which includes the Trace Resource Book, a 
cross-referenced registry of communication aids, 
training aids, switches, environmental control 
systems, software, and hardware modifications 
created or adapted for handicapped individuals. 

ADDITIONAL RESOURCES 

On-line information: 

CompuServe is a bulletin board designed for the 
general public. 5000 Arlington Center Blvd., 
Columbus, OH 43220 (614) 457-8600. 

SPECIALNET is for professionals in special 
education and related fields. GTE-Education 
Services, Inc., 2021 K Street, NW, Suite 215, 
Washington, DC 20006 (202) 835-7300. 

See also: 

National Center for Youth with Disabilities 
Voice Indexing for the Blind 



30 



INDEX 



70001, Training and Employment, Ltd. 9 

ABLEDATA 29 

ACT Test Administration 2 

American Deafness and Rehabilitation Association 

(ADARA) 16 
AIDS Action Council 13 
Alexander Graham Bell Association for the Deaf 

(AGBA) 16 
American Alliance for Health, Phys Ed, Recreation 

and Dance 3 
American Amputee Foundation (AAF) 19 
American Association for Counseling and 

Development (AACD) 3 
American Association for the Advancement of 

Science (AAAS) 3 
American Association of Collegiate Registrars and 

Admissions Officers (AACRAO) 3 
American Association of the Deaf-Blind 

(AADB) 16 

American Association of Disability Communicators 

(AADC) 1 

American Association on Mental Retardation 14 
American Chemical Society (ACS) 3 
American Council of the Blind (ACB) 22 
American Council on Rural Special Education 

(ACRES) 3 
American Foundation for the Blind (AFB) 22 
American Institute of Architects (AIA) 2 
American Printing House for the Blind, Inc. 

(APH) 22 
American Self-Help Clearinghouse 6 
American Society of Allied Health Professions 

(ASAHP) 3 
American Speech-Language-Hearing Association 

(ASHA) 16 
Apple Computer Worldwide Disability Solutions 

Group 29 
Architectural and Transportation Compliance Board 

(ATBCB) 2 
Association for Retarded Citizens (ARC) 14 
Association of Higher Education Facilities Officers 

(APPA) 2 
Association of Persons in Supported Employment 

(APSE) 9 
Association of Radio Reading Services, Inc. 22 
Association on Handicapped Student Service 

Programs in Postsecondary Education 

(AHSSPPE) 4 
Autism Society of America 14 
Center for Applied Special Technology (CAST) 29 
Center for Psychiatric Rehabilitation 21 
Center for Special Education Technology 

Information Exchange 29 
Center on Postsecondary Education for Students 

with LD (UConn) 18 
Clearinghouse on Disability Information 

(OSERS) 1 
Closing the Gap (CTG) 29 



College Board ATP Services for Handicapped 

Students 4 
ComputeAble Network 29 
Council for Learning Disabilities (CLD) 18 
Council of Citizens with Low Vision (CCLV) 22 
Council of State Administrators of Vocational 

Education (CSAVR) 11 
Cystic Fibrosis Foundation 14 
Disability Rights Education and Defense Fund, Inc. 

(DREDF) 25 
Disabled American Veterans (DAV) 1 
Educational Equity Concepts Resource Center 4 
Educational Resources Information Center 

(ERIC) 4 
Epilepsy Foundation of America 14 
Estate Planning for the Disabled 6 
Family Survival Project (FSP) 19 
Federal Student Aid Information Center 24 
Foundation Center 24 
Foundation for Science and the Handicapped 

(FSH) 4 
Fund for Equal Access to Society 25 
Gazette International Networking Institute 

(GINI) 20 
Hear You Are, Inc. (HYAI) 16 
HEATH Resource Center Inside Front Cover 
Helen Keller National Center for Deaf/Blind Youth 

and Adults 16 
IBM National Support Center for Persons with 

Disabilities 29 
ICD — International Center for the Disabled 11 
Immune Deficiency Foundation (IDF) 13 
Independent Living Research Utililization Program 

(ILRU) 10 
Institute on Alcohol, Drugs, and Disability 

(IADD) 13 
Job Accommodation Network (JAN) 9 
Job Opportunities for the Blind (JOB) 9 
Learning Disability Association (LDA) 18 
Learning Disability Network 18 
Life Services for the Handicapped, Inc. 7 
Mainstream, Inc. 9 
Mental Health Law Project (MHLP) 25 
Mobility International, USA (MIUSA) 4 
Modern Talking Picture Services, Incorporated 17 
National AIDS Information Clearinghouse 13 
National Alliance for the Mentally 111 (NAMI) 21 
National Alliance of Blind Students 22 
National Association for the Visually Handicapped 

(NAVH) 22 
National Association of Protection & Advocacy 

Systems (NAPAS) 5 
National Association of the Deaf 17 
National Association of Voc. Ed. Education Special 

Needs Personnel (NAVESNP) 5 
National Captioning Institute (NCI) 17 
National Center for Law and the Deaf 25 
National Center for Learning Disabilities 

(NCLD) 18 



31 



National Center for Youth with Disabilities 

(NCYD) 13 
National Center on Disability Services (NCDS) 9 
National Center on Employment of the Deaf 

(NCED) 10 
National Chronic Pain Outreach Association 

(NCPOA) 13 
National Clearinghouse for Professions in Special 

Education 5 
National Clearing House of Rehabilitation Training 

Materials (NCHRTM) 11 
National Committee for Citizens in Education 5 
National Council on Disability 1 
National Council on Independent Living 

(NCIL) 10 
National Down Syndrome Congress 15 
National Easter Seal Society 1 
National Federation of the Blind (NFB) 23 
National Federation of the Blind, 

Student Division 23 
National Head Injury Foundation (NIHF) 20 
National Health Information Center 14 
National Home Study Council 4 
National Information Center for Children and Youth 

with Disabilities (NICHCY) 7 
National Information Center on Deafness 

(NICD) 17 
National Library Services for the Blind and 

Physically Handicapped 23 
National Mental Health Association (NMHA) 21 
National Mental Health Consumer Self-Help 

Clearinghouse 21 
National Network of Learning Disabled 

Adults 19 
National Organization for Rare Disorders 

(NORD) 14 
National Organization on Disability (NOD) 
National Parent Network on Disabilities 

(NPND) 7 
National Rehabilitation Association (NRA) 
National Rehabilitation Information Center 

(NARIC) 12 
National Special Education Alliance 30 



1 



11 



National Spinal Cord Injury Association 20 
National Technical Institute for the Deaf 

(NTID) 17 
Orton Dyslexia Society 19 
Paralyzed Veterans of America (PVA) 20 
Parent Educational Advocacy Training Center 

(PEATC) 7 
Parents Helping Parents (PHP) 7 
President's Committee on Employment of People 

with Disabilities 10 
Public Interest Law Center of Philadelphia 

(PILCOP) 25 
Recording for the Blind, Inc. (RFB) 23 
Registry of Interpreters for the Deaf (RID) 17 
Rehabilitation International (RI) 12 
Research and Training Center on Independent 

Living (RTC/IL) 10 
Resources for Rehabilitation 23 
RESNA 30 

Self-Help Clearinghouse, American 6 
Self-Help for Hard of Hearing People (SHHH) 1 7 
Sibling Information Network 7 
Social Security Administration 10 
Specialized Training of Military Parents 

(STOMP) 7 
Spina Bifida Association of America (SBAA) 15 
Spinal Cord Injury Hotline of the American 

Paralysis Association 20 
TASH: The Association for Persons with Severe 

Handicaps 15 
Technical Assistance for Parent Programs 

(TAPP) 8 
Technical Assistance for Special Populations 

Program (TASPP) 6 
Telecommunications for the Deaf, Inc. (TDI) 17 
Thresholds Psychiatric Rehabilitation Center 21 
Trace Research and Development Center 30 
Travelin' Talk 11 

Typewriting Institute for the Handicapped 1 1 
United Cerebral Palsy Associations (UCP) 15 
Voice Indexing for the Blind, Inc. (VIB) 23 
World Institute on Disability (WID) 2 
Young Adult Institute (YAI) 15 



32 



TOLL-FREE TELEPHONE SERVICES 

of 
Organizations Listed in this Directory 

ABLEDATA (800)344-5405 

American Council of the Blind (800) 424-8666 

American Foundation for the Blind (800) 232-5463 

American Speech-Language-Hearing Association (800) 638-8255 

Architectural and Transportation Barriers Compliance 

Board (800)872-2253 

Association on Mental Retardation (800) 424-3688 

Association for Retarded Citizens (800) 433-5255 

Association of Radio Reading Service, Inc (800) 255-2777 

Center for Special Education Technology (800) 873-8255 

Cystic Fibrosis Foundation (800) 344-4823 

Epilepsy Foundation of America (Consumers) (800) 332-1000 

(Professional Library) (800) 332-4050 

Estate Planning for the Disabled (800)448-1071 

Family Survival Project (CA only) (800) 445-8106 

Federal Student Aid Information Center (800) 433-3243 

HEATH Resource Center (800) 544-3284 

IBM National Support Center for Persons with Disabilties (Voice) (800) 426-2133 

(TDD) (800) 284-9482 

Job Accommodation Network (800)526-7234 

Job Opportunities for the Blind (800) 638-7518 

Modern Talking Picture Services, Inc (800) 237-6213 

National AIDS Information Clearinghouse (800) 342-2437 

Spanish (800) 344-7432 

(TDD) (800) 243-7889 

National Alliance for the Mentally 111 (800) 950-6264 

National Alliance of Blind Students (800) 424-8666 

National Captioning Institute, Inc (Voice) (800) 533-9673 

(TDD) (800) 321-8337 

National Center for Youth with Disabilities (800) 333-6293 

National Committee for Citizens in Education (800) 638-9675 

National Down Syndrome Congres (800) 232-6372 

National Head Injury Foundation (800) 444-6443 

National Health Information Center (800) 336-4797 

National Information Center for Children and 

Youth with Disabilities (800)999-5599 

National Organization for Rare Disorders, Inc (800) 999-6673 

National Rehabilitation Information Center (800) 346-2742 

National Spinal Cord Injury Association (800) 962-9629 

Orton Dyslexia Society (800)222-3123 

Parent Educational Advocacy Training Center (800) 869-6782 

Peterson's Guides (800)388-3282 

Recording for the Blind, Inc (book orders only) (800) 221-4792 

Social Security Administration (800)234-5772 

(TDD) (800) 325-0778 

Spina Bifida Association of America (800) 621-3141 

Spinal Cord Injury Hotline (American Paralysis Assn.) (800) 526-3456 

United Cerebral Palsy Associations (800) 872-1827 

Woodbine House (800)843-7323 

NOTES: 800 numbers do not work from the organization's local area. See the listing in this Directory for 
details and for local telephone numbers. 

800 numbers are offered by an organization to increase its accessibility. Each call is charged to the 
organization and, thus, is not a totally free service. 






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